The Internet as Social Support for Older Carers of Adults With Intellectual Disabilities

被引:35
作者
Perkins, Elizabeth A. [1 ]
LaMartin, Kimberly M. [2 ]
机构
[1] Univ S Florida, Florida Ctr Inclus Communities UCEDD, Dept Child & Family Studies, Coll Behav & Community Sci, Tampa, FL 33612 USA
[2] Univ S Florida, Morsani Coll Med, Tampa, FL 33612 USA
关键词
aging; carers; caregivers; intellectual disabilities; Internet; social support; FAMILY CAREGIVERS; DEVELOPMENTAL-DISABILITIES; INFORMATION-SEEKING; NETWORKING SITES; PARENTS; CHILDREN; HEALTH; ONLINE; LIFE; PREDICTORS;
D O I
10.1111/j.1741-1130.2012.00330.x
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Social support is a potentially powerful mediator of well-being for family carers. Given that social engagement often decreases with age, the Internet broadens the opportunities for aging carers of individuals with intellectual and developmental disabilities (I/DD) to provide support to one another. This article reviews what constitutes social support, its importance to older adults, and more specifically carers of those with I/DD. Computer and Internet usage by older adults is briefly reviewed. The Internet as a medium for facilitating social support and support groups for carers is discussed. The role of the Internet in the lives of people with I/DD is also briefly reviewed. The literature review, compiled from a literature search of PubMed, Science Direct, PsycInfo, OvidSP, and CINAHL databases, revealed that there is a relative paucity of information regarding support on the Internet for aging carers, particularly for aging carers for people with I/DD. The review also revealed the utility of the Internet to be utilized as a medium for social support groups. The authors noted that aging adults can acquire new technological abilities and cognitive benefits when learning new skills. Both older adults and individuals with I/DD benefit when web sites are attentive to layout and usability. The authors suggest that Internet-based aging carer support groups that also incorporate educational content should be developed. Although many research questions remain about the design of Internet-based carer groups, web sites that appeal to both carers and individuals with I/DD for peer support and information are interesting avenues for further investigation.
引用
收藏
页码:53 / 62
页数:10
相关论文
共 91 条
[21]   Social implications of the Internet [J].
DiMaggio, P ;
Hargittai, E ;
Neuman, WR ;
Robinson, JP .
ANNUAL REVIEW OF SOCIOLOGY, 2001, 27 :307-336
[22]   Health related virtual communities and electronic support groups: systematic review of the effects of online peer to peer interactions [J].
Eysenbach, G ;
Powell, J ;
Englesakis, M ;
Rizo, C ;
Stern, A .
BMJ-BRITISH MEDICAL JOURNAL, 2004, 328 (7449) :1166-1170A
[23]   Explaining differences in access to home computers and the Internet: A comparison of Latino groups to other ethnic and racial groups [J].
Fairlie R.W. .
Electronic Commerce Research, 2007, 7 (3-4) :265-291
[24]   Social networking sites: a novel portal for communication [J].
Farmer, A. D. ;
Holt, C. E. M. Bruckner ;
Cook, M. J. ;
Hearing, S. D. .
POSTGRADUATE MEDICAL JOURNAL, 2009, 85 (1007) :455-459
[25]  
Fernandez-Luque L., 2010, C P INT C IEEE ENG M, P1053
[26]  
Fiori K. L., 2006, J GERONTOL B-PSYCHOL, V61B, pP25
[27]   The hero's story and autism - Grounded theory study of websites for parents of children with autism [J].
Fleischmann, A .
AUTISM, 2005, 9 (03) :299-316
[28]  
George L.K., 1996, HDB AGING SOCIAL SCI, V4th, P229
[29]  
Greenberg J. S., 1997, FAM RELAT, V46, P338
[30]   Online Social Networking by Patients with Diabetes: A Qualitative Evaluation of Communication with Facebook [J].
Greene, Jeremy A. ;
Choudhry, Niteesh K. ;
Kilabuk, Elaine ;
Shrank, William H. .
JOURNAL OF GENERAL INTERNAL MEDICINE, 2011, 26 (03) :287-292