The relationship between quality of life and functioning for children with cerebral palsy

被引:102
作者
Shelly, A. [2 ]
Davis, E. [1 ]
Waters, E. [1 ]
Mackinnon, A. [3 ]
Reddihough, D. [4 ]
Boyd, R. [5 ]
Reid, S. [6 ]
Graham, H. K. [7 ]
机构
[1] Univ Melbourne, Sch Populat Hlth, McCaughey Ctr, Vichlth Ctr Promot Mental Hlth & Community Wellbe, Carlton, Vic 3053, Australia
[2] Univ Melbourne, Sch Hlth & Social Dev, Carlton, Vic 3053, Australia
[3] Australian Natl Univ, Mental Hlth Res Ctr, Canberra, ACT, Australia
[4] Royal Childrens Hosp, Dept Dev Med, Melbourne, Vic, Australia
[5] Univ Queensland, Fac Med, Queensland Cerebral Palsy & Rehabil Res Ctr, Brisbane, Qld, Australia
[6] Royal Childrens Hosp, Murdoch Childrens Res Inst, Melbourne, Vic, Australia
[7] Royal Childrens Hosp, Dept Orthopaed, Melbourne, Vic, Australia
关键词
D O I
10.1111/j.1469-8749.2008.02031.x
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
Given that quality of life (QOL) is commonly confused with functioning, the aim of this study was to examine the association between functioning and QOL domains for children with cerebral palsy (CP). Two hundred and five parents of children aged 4 to 12 years with CP and 53 children aged 9 to 12 years with CP, completed the Cerebral Palsy Quality of Life Questionnaire for Children. Children were distributed reasonably evenly between sex (male, 54.6%) and Gross Motor Function Classification System levels (I 17.8%, II 28.3%, III 14.1%, IV 11.2%, and V 27.3%). For parent proxy-report, all domains of QOL were significantly associated with functioning level except access to services. For child self-report, feelings about functioning, participation and physical health, and pain and feelings about disability, were significantly associated with functioning level. Physical type domains of QOL accounted for more of the variance in functioning than psychosocial type domains. Children with CP have the potential to report a high psychosocial QOL score even if they have poor functioning.
引用
收藏
页码:199 / 203
页数:5
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