Delivery of Internet-based cancer genetic counselling services to patients' homes: a feasibility study

被引:40
作者
Meropol, Neal J. [1 ]
Daly, Mary B. [2 ]
Vig, Hetal S. [2 ]
Manion, Frank J. [2 ]
Manne, Sharon L. [2 ]
Mazar, Carla [2 ]
Murphy, Camara [2 ]
Solarino, Nicholas [2 ]
Zubarev, Vadim [2 ]
机构
[1] Case Western Reserve Univ, Univ Hosp Case Med Ctr, Case Comprehens Canc Ctr, Cleveland, OH 44106 USA
[2] Fox Chase Canc Ctr, Philadelphia, PA 19111 USA
关键词
OVARIAN-CANCER; TELEGENETICS; BREAST; TELEMEDICINE; PHYSICIANS; KNOWLEDGE; PROJECT; IMPACT; WOMEN;
D O I
10.1258/jtt.2010.100116
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
We examined the feasibility of home videoconferencing for providing cancer genetic education and risk information to people at risk. Adults with possible hereditary colon or breast and ovarian cancer syndromes were offered Internet-based counselling. Participants were sent web cameras and software to install on their home PCs. They watched a prerecorded educational video and then took part in a live counselling session with a genetic counsellor. A total of 31 participants took part in Internet counselling sessions. Satisfaction with counselling was high in all domains studied, including technical (mean 4.3 on a 1-5 scale), education (mean 4.7), communication (mean 4.8), psychosocial (mean 4.1) and overall (mean 4.2). Qualitative data identified technical aspects that could be improved. All participants reported that they would recommend Internet-based counselling to others. Internet-based genetic counselling is feasible and associated with a high level of satisfaction among participants.
引用
收藏
页码:36 / 40
页数:5
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