User experiences, usability, and social presence of a peer-to-peer support app: survey of young adults affected by cancer

被引:2
|
作者
Benedict, C. [1 ]
Lazard, A. J. [2 ,3 ]
Smith, S. M. [4 ]
Agrawal, A. [1 ]
Collins, M. K. R. [2 ]
Love, B. [5 ]
机构
[1] Stanford Univ, Sch Med, Psychiat & Behav Sci, Palo Alto, CA 94304 USA
[2] Univ North Carolina Chapel Hill, Hussman Sch Journalism & Media, Chapel Hill, NC 27514 USA
[3] Univ N Carolina, Lineberger Comprehens Canc Ctr, Chapel Hill, NC 27515 USA
[4] Lucile Packard Childrens Hosp Stanford, Dept Pediat, Div Hematol Oncol, Palo Alto, CA USA
[5] Univ Texas Austin, Stan Richards Sch Advertising & Publ Relat, Austin, TX 78712 USA
关键词
Cancer survivors; social support; social media; young adults; mobile; QUALITY-OF-LIFE; SURVIVORS; ADOLESCENTS; ACCEPTANCE; AYA; INFORMATION; MEDIA; NEEDS; RESOURCES; INTERNET;
D O I
10.1080/00909882.2021.1971737
中图分类号
G2 [信息与知识传播];
学科分类号
05 ; 0503 ;
摘要
Young adult (YA) cancer survivors often experience social isolation. Mobile apps facilitate peer-to-peer connections, yet little is known about their use. YA survivors (N = 181) were surveyed about a peer-to-peer cancer support app. Among those with it downloaded, 36% reported daily/weekly use. One-to-one messaging and group chat features were easy-to-use and useful, but facilitation of social presence was variable. Within group chats, 55% participated in discussions; 45% observed conversations without contributing. The app was helpful for convenient access to peer support (84%), particularly when offline social networks were inadequate (83%); some (16-25%) reported nervousness initiating connections. Qualitative feedback identified facilitators and barriers to adoption and sustained engagement. Recommendations centered on improving design and logistical factors and facilitating in-app connections. App-based peer support is promising for addressing social isolation among YA survivors. Future research should examine theory-based communication and design features to encourage meaningful engagement and longitudinal effects on psychosocial outcomes.
引用
收藏
页码:497 / 514
页数:18
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