User experiences, usability, and social presence of a peer-to-peer support app: survey of young adults affected by cancer

被引:2
|
作者
Benedict, C. [1 ]
Lazard, A. J. [2 ,3 ]
Smith, S. M. [4 ]
Agrawal, A. [1 ]
Collins, M. K. R. [2 ]
Love, B. [5 ]
机构
[1] Stanford Univ, Sch Med, Psychiat & Behav Sci, Palo Alto, CA 94304 USA
[2] Univ North Carolina Chapel Hill, Hussman Sch Journalism & Media, Chapel Hill, NC 27514 USA
[3] Univ N Carolina, Lineberger Comprehens Canc Ctr, Chapel Hill, NC 27515 USA
[4] Lucile Packard Childrens Hosp Stanford, Dept Pediat, Div Hematol Oncol, Palo Alto, CA USA
[5] Univ Texas Austin, Stan Richards Sch Advertising & Publ Relat, Austin, TX 78712 USA
关键词
Cancer survivors; social support; social media; young adults; mobile; QUALITY-OF-LIFE; SURVIVORS; ADOLESCENTS; ACCEPTANCE; AYA; INFORMATION; MEDIA; NEEDS; RESOURCES; INTERNET;
D O I
10.1080/00909882.2021.1971737
中图分类号
G2 [信息与知识传播];
学科分类号
05 ; 0503 ;
摘要
Young adult (YA) cancer survivors often experience social isolation. Mobile apps facilitate peer-to-peer connections, yet little is known about their use. YA survivors (N = 181) were surveyed about a peer-to-peer cancer support app. Among those with it downloaded, 36% reported daily/weekly use. One-to-one messaging and group chat features were easy-to-use and useful, but facilitation of social presence was variable. Within group chats, 55% participated in discussions; 45% observed conversations without contributing. The app was helpful for convenient access to peer support (84%), particularly when offline social networks were inadequate (83%); some (16-25%) reported nervousness initiating connections. Qualitative feedback identified facilitators and barriers to adoption and sustained engagement. Recommendations centered on improving design and logistical factors and facilitating in-app connections. App-based peer support is promising for addressing social isolation among YA survivors. Future research should examine theory-based communication and design features to encourage meaningful engagement and longitudinal effects on psychosocial outcomes.
引用
收藏
页码:497 / 514
页数:18
相关论文
共 12 条
  • [1] Using Social Media for Peer-to-Peer Cancer Support: Interviews With Young Adults With Cancer
    Lazard, Allison J.
    Collins, Meredith K. Reffner
    Hedrick, Ashley
    Varma, Tushar
    Love, Brad
    Valle, Carmina G.
    Brooks, Erik
    Benedict, Catherine
    JMIR CANCER, 2021, 7 (03):
  • [2] Peer-to-peer connections: Perceptions of a social support app designed for young adults with cancer
    Lazard, Allison J.
    Saffer, Adam J.
    Horrell, Lindsey
    Benedict, Catherine
    Love, Brad
    PSYCHO-ONCOLOGY, 2020, 29 (01) : 173 - 181
  • [3] Experiences of Peer Communities in a Cancer Smartphone App Among Adolescents and Young Adults With Cancer
    Hanghoj, Signe
    Bentsen, Line
    Hjerming, Maiken
    Simonsen, Anette Borup
    Thycosen, Marianne
    Bergmann, Mette Buur
    Godiksen, Dorthe Ostergaard
    Pappot, Helle
    SEMINARS IN ONCOLOGY NURSING, 2023, 39 (04)
  • [4] Initiation and changes in use of social media for peer support among young adult cancer patients and survivors
    Lazard, Allison J.
    Collins, Meredith K. Reffner
    Hedrick, Ashley
    Horrell, Lindsey N.
    Varma, Tushar
    Love, Brad
    Valle, Carmina G.
    Benedict, Catherine
    PSYCHO-ONCOLOGY, 2021, 30 (11) : 1859 - 1865
  • [5] Online peer-to-peer support for persons affected by prostate cancer: A systematic review
    Ihrig, Andreas
    Karschuck, Philipp
    Haun, Markus W.
    Thomas, Christian
    Huber, Johannes
    PATIENT EDUCATION AND COUNSELING, 2020, 103 (10) : 2107 - 2115
  • [6] Experiences and perspectives of peer support among young adults with epilepsy
    Batchelor, Rachel
    Taylor, Michelle D.
    EPILEPSY & BEHAVIOR REPORTS, 2023, 21
  • [7] Peer Support Needs and Preferences for Digital Peer Navigation among Adolescent and Young Adults with Cancer: A Canadian Cross-Sectional Survey
    Bender, Jacqueline L.
    Puri, Natasha
    Salih, Sarah
    D'Agostino, Norma M.
    Tsimicalis, Argerie
    Howard, A. Fuchsia
    Garland, Sheila N.
    Chalifour, Karine
    Drake, Emily K.
    Marrato, Anthony
    McKean, Nikki L.
    Gupta, Abha A.
    CURRENT ONCOLOGY, 2022, 29 (02) : 1163 - 1175
  • [8] Diagnosis Disclosure and Peer-to-Peer Information Seeking Among COVID-19-Infected Social Media Users: Survey of US-Based Adults
    Neely, Stephen
    Hao, Feng
    JMIR FORMATIVE RESEARCH, 2023, 7
  • [9] A Novel Palliative Care Peer Support Program for Adolescents and Young Adults: Survey and Factor Analytic Study
    Walker, Andrew L.
    Rujimora, James
    Swygert, Anna
    McNiece, Zachary
    Yoon, Eunhui
    Machado, Mercedes
    Myers, Kenneth
    Richardson, Eric
    Lenes, Emilie
    Hebert, Lindsay
    Marchi, Emily
    Arthurson-McColl, Zoe
    Lagmay, Joanne
    Puig, Ana
    JOURNAL OF PALLIATIVE MEDICINE, 2023, 26 (05) : 627 - 636
  • [10] Talking About Cancer and Meeting Peer Survivors: Social Information Needs of Adolescents and Young Adults Diagnosed with Cancer
    Kent, Erin E.
    Smith, Ashley Wilder
    Keegan, Theresa H. M.
    Lynch, Charles F.
    Wu, Xiao-Cheng
    Hamilton, Ann S.
    Kato, Ikuko
    Schwartz, Stephen M.
    Harlan, Linda C.
    JOURNAL OF ADOLESCENT AND YOUNG ADULT ONCOLOGY, 2013, 2 (02) : 44 - 52