What makes administrative data "research-ready"? A systematic review and thematic analysis of published literature

被引:0
作者
Mc Grath-Lone, Louise [1 ]
Jay, Matthew A. [2 ]
Blackburn, Ruth [1 ]
Gordon, Emma [3 ]
Zylbersztejn, Ania [2 ]
Wiljaars, Linda [2 ]
Gilbert, Ruth [1 ,2 ]
机构
[1] UCL, Inst Hlth Informat, London, England
[2] UCL, Populat Policy & Practice Res & Teaching Dept, Great Ormond St Inst Child Hlth, London, England
[3] Econ & Social Res Council, Adm Data Res UK, London, England
来源
INTERNATIONAL JOURNAL OF POPULATION DATA SCIENCE (IJPDS) | 2022年 / 7卷 / 01期
基金
英国经济与社会研究理事会; 英国医学研究理事会;
关键词
administrative data; research-ready; systematic review; thematic analysis; CRITICAL-CARE; HEALTH; CHILDREN; IMPACT;
D O I
10.23889/ijpds.v7i1.1718
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Introduction Administrative data are a valuable research resource, but are under-utilised in the UK due to governance, technical and other barriers (e.g., the time and effort taken to gain secure data access). In recent years, there has been considerable government investment in making administrative data "research-ready", but there is no definition of what this term means. A common understanding of what constitutes research-ready administrative data is needed to establish clear principles and frameworks for their development and the realisation of their full research potential. Objective To define the characteristics of research-ready administrative data based on a systematic review and synthesis of existing literature. Methods On 29th June 2021, we systematically searched seven electronic databases for (1) peer-reviewed literature (2) related to research-ready administrative data (3) written in the English language. Following supplementary searches and snowball screening, we conducted a thematic analysis of the identified relevant literature. Results Overall, we screened 2,375 records and identified 38 relevant studies published between 2012 and 2021. Most related to administrative data from the UK and US and particularly to health data. The term research-ready was used inconsistently in the literature and there was some conflation with the concept of data being ready for statistical analysis. From the thematic analysis, we identified five defining characteristics of research-ready administrative data: (a) accessible, (b) broad, (c) curated, (d) documented and (e) enhanced for research purposes. Conclusions Our proposed characteristics of research-ready administrative data could act as a starting point to help data owners and researchers develop common principles and standards. In the more immediate term, the proposed characteristics are a useful framework for cataloguing existing research-ready administrative databases and relevant resources that can support their development.
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共 70 条
  • [1] Real-world first-line treatment and overall survival in non-small cell lung cancer without known EGFR mutations or ALK rearrangements in US community oncology setting
    Abernethy, Amy P.
    Arunachalam, Ashwini
    Burke, Thomas
    McKay, Caroline
    Cao, Xiting
    Sorg, Rachael
    Carbone, David P.
    [J]. PLOS ONE, 2017, 12 (06):
  • [2] ADR UK, 2019, ANN REPORT 2018 19 A
  • [3] ADR UK, 2021, ADR UK SEC 90 MILL F
  • [4] [Anonymous], 2020, INT J POPULATION DAT
  • [5] Development of an algorithm for determining smoking status and behaviour over the life course from UK electronic primary care records
    Atkinson, Mark D.
    Kennedy, Jonathan I.
    John, Ann
    Lewis, Keir E.
    Lyons, Ronan A.
    Brophy, Sinead T.
    [J]. BMC MEDICAL INFORMATICS AND DECISION MAKING, 2017, 17
  • [6] Barreto M L, 2019, Int J Popul Data Sci, V4, P1140, DOI 10.23889/ijpds.v4i2.1140
  • [7] Community water fluoridation exposure and dental caries experience in newly enrolled members of the Canadian Armed Forces 2006-2017
    Batsos, Constantine
    Boyes, Randy
    Mahar, Alyson
    [J]. CANADIAN JOURNAL OF PUBLIC HEALTH-REVUE CANADIENNE DE SANTE PUBLIQUE, 2021, 112 (03): : 513 - 520
  • [8] Are food and drink available in online and physical supermarkets the same? A comparison of product availability, price, price promotions and nutritional information
    Bhatnagar, Prachi
    Scarborough, Peter
    Kaur, Asha
    Dikmen, Derya
    Adhikari, Vyas
    Harrington, Richard
    [J]. PUBLIC HEALTH NUTRITION, 2021, 24 (05) : 819 - 825
  • [9] Structured Data Entry in the Electronic Medical Record: Perspectives of Pediatric Specialty Physicians and Surgeons
    Bush, Ruth A.
    Kuelbs, Cynthia
    Ryu, Julie
    Jiang, Wen
    Chiang, George
    [J]. JOURNAL OF MEDICAL SYSTEMS, 2017, 41 (05)
  • [10] Recognizing, reporting and reducing the data curation debt of cohort studies
    Butters, Oliver W.
    Wilson, Rebecca C.
    Burton, Paul R.
    [J]. INTERNATIONAL JOURNAL OF EPIDEMIOLOGY, 2020, 49 (04) : 1067 - 1074