Factors contributing to the longitudinal development of social participation in individuals with cerebral palsy

被引:26
|
作者
Tan, Siok Swan [1 ,2 ]
van der Slot, Wilma M. A. [1 ,3 ]
Ketelaar, Marjolijn [4 ,5 ,6 ,7 ]
Becher, Jules G. [8 ]
Dallmeijer, Annet J. [8 ]
Smits, Dirk-Wouter [4 ,5 ,6 ,7 ]
Roebroeck, Marij E. [1 ,3 ]
机构
[1] Erasmus MC Univ Med Ctr, Dept Rehabil, Rotterdam, Netherlands
[2] Erasmus Univ, Inst Med Technol Assessment, Rotterdam, Netherlands
[3] Rijndam Rehabil Inst, Rotterdam, Netherlands
[4] Univ Med Ctr Utrecht, Brain Ctr Rudolf Magnus, Utrecht, Netherlands
[5] Univ Med Ctr Utrecht, Ctr Excellence Rehabil Med, Utrecht, Netherlands
[6] De Hoogstr Rehabil, Utrecht, Netherlands
[7] Partner NetChild, Network Childhood Disabil Res, Utrecht, Netherlands
[8] Vrije Univ Amsterdam, Med Ctr, Dept Rehabil Med, Amsterdam, Netherlands
关键词
Cerebral palsy; Social participation; Associated factors; Longitudinal development; Social functioning; Lifespan expectations; ABILITY CLASSIFICATION-SYSTEM; GROSS MOTOR FUNCTION; QUALITY-OF-LIFE; YOUNG-ADULTS; INTERNATIONAL-CLASSIFICATION; CHILDREN; TRAJECTORIES; ADOLESCENTS; COMMUNICATION; ASSOCIATION;
D O I
10.1016/j.ridd.2016.03.015
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
Aims: We aimed to determine factors associated with the longitudinal development of social participation in a Dutch population of individuals with Cerebral Palsy (CP) aged 1-24 years. Methods and procedures: For this multicentre prospective longitudinal study, 424 individuals with CP aged 1-24 years were recruited from various rehabilitation centers in The Netherlands. Social participation was measured with the Vineland Adaptive Behavior Scales. We assessed associations with age, intellectual impairment, level of gross motor function, gender, type of CP, manual ability, epilepsy, hearing-, visual-, speech impairment and pain, internalizing- and externalizing behavioral problems, type of education and parental level of education. Each individual was measured 3 or 4 times. The time between measurements was 1 or 2 years. Outcomes and results: Epilepsy and speech impairment were each independently associated with the longitudinal development of social participation. The effects were rather small and did not change with age. Also, a trend was found that children attending special education develop less favorably in social participation. Conclusions and implications: Our results might provide parents and caregivers with starting points to further develop tailored support for individuals with epilepsy, with speech impairment and/or attending special education at risk for suboptimal social participation. (C) 2016 Published by Elsevier Ltd.
引用
收藏
页码:125 / 135
页数:11
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