Parental Experiences with Early Identification and Initial Care for their Child with Autism: Tailored Improvement Strategies

被引：7

作者：

Snijder, Michelle I. J. ^{[1
,2
]}

Langerak, Ilse P. C. ^{[3
]}

Kaijadoe, Shireen P. T. ^{[1
]}

Buruma, Marrit E. ^{[4
]}

Verschuur, Rianne ^{[5
]}

Dietz, Claudine ^{[1
]}

Buitelaar, Jan K. ^{[1
,2
]}

Oosterling, Iris J. ^{[1
]}

机构：

[1] Karakter Child & Adolescent Psychiat Univ Ctr, Reinier Postlaan 12, NL-6525 GC Nijmegen, Netherlands

[2] Radboudumc, Dept Cognit Neurosci, Donders Inst Brain Cognit & Behav, Nijmegen, Netherlands

[3] Apanta GGZ, Veldhoven, Netherlands

[4] INTERPSY, Groningen, Netherlands

[5] Dr Leo Kannerhuis, Arnhem, Netherlands

来源：

JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS | 2022年 / 52卷 / 08期

关键词：

Autism spectrum disorder; Early detection; Preventive care; Parental experiences; Improvement strategies; SPECTRUM DISORDER; FOLLOW-UP; INTERVENTION; DIAGNOSIS; CHECKLIST; TODDLERS;

D O I：

10.1007/s10803-021-05226-y

中图分类号：

B844 [发展心理学（人类心理学）];

学科分类号：

040202 ;

摘要：

Whereas it is well documented how parents experience the diagnostic process of their child with autism spectrum disorder (ASD), less is known about parental experiences with the course of the early identification process and first steps in receiving care for their child with ASD symptoms. This mixed-method study investigated these experiences as well as barriers and improvement strategies regarding early detection in the Netherlands. A parental survey (N = 45) showed that, on average, initial concerns started at 22 months. A focus group (N = 10) revealed multiple barriers and proposed strategies of improvement in three domains: "Knowledge and Expertise", "Attention to Parental Needs" and "System and Organization". Strategies to improve early identification will be discussed based on parental perspectives and professional perspectives.

引用

页码：3473 / 3485

页数：13

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