Multi-informant International Perspectives on the Facilitators and Barriers to Employment for Autistic Adults

被引:72
作者
Black, Melissa H. [1 ,2 ,13 ]
Mahdi, Soheil [3 ,4 ,5 ]
Milbourn, Benjamin [1 ,2 ]
Scott, Melissa [1 ,2 ]
Gerber, Alan [6 ]
Esposito, Christopher [6 ]
Falkmer, Marita [1 ,2 ,7 ]
Lerner, Matthew D. [6 ]
Halladay, Alycia [8 ,12 ]
Strom, Eva [9 ]
D'Angelo, Axel [3 ,4 ,5 ]
Falkmer, Torbjorn [1 ,2 ,10 ]
Bolte, Sven [1 ,2 ,3 ,4 ,5 ,11 ]
Girdler, Sonya [1 ,2 ]
机构
[1] Curtin Univ, Sch Occupat Therapy Social Work & Speech Pathol, Perth, WA, Australia
[2] Curtin Univ, Curtin Autism Res Grp, Perth, WA, Australia
[3] Karolinska Inst, Ctr Psychiat Res, Ctr Neurodev Disorders KIND, Stockholm, Region Stockhol, Sweden
[4] Karolinska Inst, Dept Womens & Childrens Hlth, Stockholm, Region Stockhol, Sweden
[5] Stockholm Hlth Care Serv, Stockholm, Region Stockhol, Sweden
[6] SUNY Stony Brook, Stony Brook, NY 11794 USA
[7] Jonkoping Univ, Sch Educ & Commun, Swedish Inst Disabil Res, CHILD, Jonkoping, Sweden
[8] Autism Sci Fdn, New York, NY USA
[9] Swedish Publ Employment Serv, Unit Rehabil & Work, Stockholm, Sweden
[10] Linkoping Univ, Dept Hlth Med & Caring Sci, Pain & Rehabil Ctr, Linkoping, Sweden
[11] Stockholm Hlth Care Serv, Child & Adolescent Psychiat, Stockholm, Region Stockhol, Sweden
[12] Rutgers State Univ, Dept Pharmacol & Toxicol, New Brunswick, NJ USA
[13] GPO Box U1987, Perth, WA 6845, Australia
关键词
autism; cross-cultural; employment; key stakeholders; adults; SPECTRUM DISORDER; EMPLOYEES; DISABILITIES;
D O I
10.1002/aur.2288
中图分类号
B84 [心理学]; C [社会科学总论]; Q98 [人类学];
学科分类号
03 ; 0303 ; 030303 ; 04 ; 0402 ;
摘要
Employment rates for autistic individuals are poor, even compared to those from other disability groups. Internationally, there remains limited understanding of the factors influencing employment across the stages of preparing for, gaining, and maintaining employment. This is the third in a series of studies conducted as part of an International Society for Autism Research (INSAR) policy brief intended to improve employment outcomes for autistic individuals. A multi-informant international survey with five key stakeholder groups, including autistic individuals, their families, employers, service providers, and researchers, was undertaken in Australia, Sweden, and the United States to understand the facilitators and barriers to employment for autistic adults. A total of 687 individuals participated, including autistic individuals (n = 246), family members (n = 233), employers (n = 35), clinicians/service providers (n = 123), and researchers (n = 50). Perceptions of the facilitators and barriers to employment differed significantly across both key stakeholder groups and countries, however, ensuring a good job match and focusing on strengths were identified by all groups as important for success. Key barriers to employment included stigma, a lack of understanding of autism spectrum disorder (ASD) and communication difficulties. Results suggest that a holistic approach to employment for autistic individuals is required, aimed at facilitating communication between key stakeholders, addressing attitudes and understanding of ASD in the workplace, using strength-based approaches and providing early work experience. Lay Summary Autistic individuals experience significant difficulty getting and keeping a job. This article presents a survey study involving autistic individuals, their families, employers, service providers and researchers in Australia, Sweden, and the United States to understand their perspectives on the factors that support or act as barriers to employment. While perspectives varied across key stakeholders, strategies such as using a holistic approach, targeting workplace attitudes and understanding, focusing on strengths, and providing early work experience are important for success. (c) 2020 International Society for Autism Research, Wiley Periodicals, Inc.
引用
收藏
页码:1195 / 1214
页数:20
相关论文
共 39 条
[1]  
American Psychiatric Association, 1980, Diagnostic and Statistical Manual of Mental Disorders, V3rd ed.
[2]  
[Anonymous], 2010, Sickness, Disability and Work: Breaking the Barriers: A Synthesis of Findings across OECD Countries, DOI DOI 10.1787/9789264088856-EN
[3]  
[Anonymous], 2008, WMA declaration of Helsinki: Ethical principles for medical research involving human subjects
[4]  
[Anonymous], 2016, Employment Rate (Indicator), DOI DOI 10.1787/1DE68A9B-EN
[5]  
Artologik, 2018, Artologik, Survey and Report
[6]  
Australian Bureau of Statistics, 2017, 4430 0 DIS AG CAR AU
[7]  
Autism Spectrum Australia, 2013, WE BEL EXP ASP NEEDS
[8]   Employment Activities and Experiences of Adults with High-Functioning Autism and Asperger's Disorder [J].
Baldwin, Susanna ;
Costley, Debra ;
Warren, Anthony .
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2014, 44 (10) :2440-2449
[9]   Perspectives of key stakeholders on employment of autistic adults across the united states, australia, and sweden [J].
Black, Melissa H. ;
Mandi, Soheil ;
Milbourn, Benjamin ;
Thompson, Craig ;
D'Angelo, Axel ;
Strom, Eva ;
Falkmer, Marita ;
Falkmer, Torbjorn ;
Lerner, Matthew ;
Halladay, Alycia ;
Gerber, Alan ;
Esposito, Christopher ;
Girdler, Sonya ;
Bolte, Sven .
AUTISM RESEARCH, 2019, 12 (11) :1648-1662
[10]   The Gestalt of functioning in autism spectrum disorder: Results of the international conference to develop final consensus International Classification of Functioning, Disability and Health core sets [J].
Bolte, Sven ;
Mahdi, Soheil ;
de Vries, Petrus J. ;
Granlund, Mats ;
Robison, John E. ;
Shulman, Cory ;
Swedo, Susan ;
Tonge, Bruce ;
Wong, Virginia ;
Zwaigenbaum, Lonnie ;
Segerer, Wolfgang ;
Selb, Melissa .
AUTISM, 2019, 23 (02) :449-467