Caregiver burden and health-related quality of life among primary family caregivers of individuals with schizophrenia: a cross-sectional study

被引:48
作者
Hsiao, Chiu-Yueh [1 ,2 ]
Lu, Huei-Lan [3 ]
Tsai, Yun-Fang [1 ,4 ,5 ]
机构
[1] Chang Gung Univ, Coll Med, Sch Nursing, 259 Wen Hwa 1st Rd Taiwan, Taoyuan 333, Taiwan
[2] Chang Gung Mem Hosp, Dept Psychiat, Taoyuan, Taiwan
[3] Minist Hlth & Welf, Jianan Psychiat Ctr, 80,Ln 870,Zhongshan Rd, Tainan 717, Taiwan
[4] Chang Gung Univ Sci & Technol, Dept Nursing, 261,Wen Hwa 1st Rd, Taoyuan 333, Taiwan
[5] Chang Gung Mem Hosp Keelung, Dept Psychiat, 222 Maijin Rd, Keelung 204, Taiwan
关键词
Caregiver burden; Family coping strategies; Health-related quality of life; Primary family caregiver; Mutuality; Schizophrenia; PERCEIVED BURDEN; MUTUALITY; PEOPLE; INTERVENTIONS; PREPAREDNESS; PREDICTORS; DISORDERS; PSYCHOSIS;
D O I
10.1007/s11136-020-02518-1
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Purpose This study aimed to examine correlates of caregiver burden and health-related quality of life (HRQoL) among primary family caregivers of individuals with schizophrenia in inpatient psychiatric rehabilitation facilities. Methods A cross-sectional study was conducted with 157 Taiwanese primary family caregivers of individuals with schizophrenia residing in inpatient psychiatric facilities. Measures included socio-demographic questionnaires and clinical information, Mutuality Scale, Family Crisis-Oriented Personal Evaluation Scales, Zarit Burden Interview, and World Health Organization Quality of Life-brief version. To describe the degree of caregiver burden and domains of HRQoL, descriptive statistics were computed. Independent sample t test, one-way analysis of variance, and Pearson's correlation analysis followed by multiple regression analyses were performed to determine correlations and relationships between characteristics of patients and primary family caregivers with caregiver burden and domains of HRQoL. Results Primary family caregivers experienced mild to moderate caregiver burden and poor HRQoL. Primary family caregivers who were older and unemployed, caring for patient's severe psychiatric symptoms, and had low monthly incomes, decreased mutuality, and fewer family coping strategies were associated with greater caregiver burden and poor HRQoL. Greater mutuality and family coping strategies of reframing and seeking spiritual support were the most significant factors in improving caregiver burden and all domains of HRQoL, respectively. Conclusion Family-focused interventions for caregivers of institutionalized persons with schizophrenia that include psychological support and peer support groups are recommended to enhance mutuality and family coping strategies, reduce caregiver burden, and improve HRQoL.
引用
收藏
页码:2745 / 2757
页数:13
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