A Proposed Model for Perinatal Palliative Care

被引：32

作者：

Cole, Joanna C. M. ^{[2
,3
]}

Moldenhauer, Julie S. ^{[1
,2
,4
]}

Jones, Tyra R. ^{[1
,5
]}

Shaughnessy, Elizabeth A. ^{[6
]}

Zarrin, Haley E. ^{[1
]}

Coursey, Aimee L. ^{[4
]}

Munson, David A. ^{[2
,7
,8
]}

机构：

[1] Childrens Hosp Philadelphia, Ctr Fetal Diag & Treatment, 34th St & Civ Ctr Blvd,5th Floor Wood Ctr, Philadelphia, PA 19104 USA

[2] Univ Penn, Perelman Sch Med, Philadelphia, PA 19104 USA

[3] Childrens Hosp Philadelphia, Psychosocial Programs, Ctr Fetal Diag & Treatment, Philadelphia, PA 19104 USA

[4] Childrens Hosp Philadelphia, Garbose Family Special Delivery Unit, Philadelphia, PA 19104 USA

[5] Univ Penn, Sch Nursing, Philadelphia, PA 19104 USA

[6] Barbara Bush Childrens Hosp, Maine Med Ctr, Portland, ME USA

[7] Childrens Hosp Philadelphia, Harriet & Ronald Lassin Newborn Infant Intens Car, Philadelphia, PA 19104 USA

[8] Childrens Hosp Philadelphia, Philadelphia, PA 19104 USA

来源：

JOGNN-JOURNAL OF OBSTETRIC GYNECOLOGIC AND NEONATAL NURSING | 2017年 / 46卷 / 06期

关键词：

multidisciplinary care team; palliative care; perinatal loss; trisomy; 13; PARENTS; CONTEXT; PROGRAM;

D O I：

10.1016/j.jogn.2017.01.014

中图分类号：

R47 [护理学];

学科分类号：

1011 ;

摘要：

Perinatal palliative care allows for an active partnership among a pregnant woman, her family, and her multidisciplinary treatment team and addresses her specialized medical care, emotional, social, and familial needs when a life-limiting fetal diagnosis is confirmed. The purpose of this article is to highlight the multidisciplinary care model used within a perinatal palliative care program. A case study provides a unique perspective on support needed for parents who anticipate that their newborn may die before or shortly after birth.

引用

页码：904 / 911

页数：8

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