Family donor care management: principles and recommendations

被引:43
作者
van Walraven, S. M. [1 ]
Nicoloso-de Faveri, G. [2 ]
Axdorph-Nygell, U. A. I. [3 ]
Douglas, K. W. [4 ]
Jones, D. A. [5 ]
Lee, S. J. [6 ]
Pulsipher, M. [7 ]
Ritchie, L. [8 ]
Halter, J. [9 ]
Shaw, B. E. [8 ,10 ]
机构
[1] Leiden Univ, Med Ctr, Dept Pediat Stem Cell Transplantat, Willem Alexander Children & Youth Ctr, NL-2300 RC Leiden, Netherlands
[2] Swiss Blood Stem Cells, Bern, Switzerland
[3] Karolinska Univ Hosp, Stockholm, Sweden
[4] Scottish Natl Blood Transfus Serv, Glasgow, Lanark, Scotland
[5] NHS Blood & Transplant, Sheffield, S Yorkshire, England
[6] Fred Hutchinson Canc Res Ctr, Div Clin Res, Seattle, WA 98104 USA
[7] Univ Utah, Sch Med, Div Hematol BMT, Salt Lake City, UT USA
[8] Royal Marsden NHS Fdn Trust, Sect Haematooncol, London, England
[9] Univ Basel Hosp, Div Hematol, CH-4031 Basel, Switzerland
[10] Anthony Nolan Trust, London, England
关键词
family donors; stem cell donation; unrelated donors; donor care management; COLONY-STIMULATING FACTOR; BONE-MARROW DONATION; STEM-CELLS; CHILDREN; EVENTS;
D O I
10.1038/bmt.2009.354
中图分类号
Q6 [生物物理学];
学科分类号
071011 ;
摘要
The World Marrow Donor Association (WMDA) is an international organization fostering collaboration in clinical transplantation and promoting the interests of unrelated stem cell donors. The WMDA has developed standards for the recruitment, counseling, work-up and subsequent donations to protect the interests of donors. Although the care of family donors has been carefully considered and managed in transplant centers (TCs) internationally over numerous years (and increasingly TCs are facing accreditation programs, which address this issue) there is currently a lack of standardized guidelines for the management of family donors. The underlying principles of family donor care are in many ways identical to those concerning unrelated donors, although key ethical considerations differ. Although the WMDA is primarily involved in the field of unrelated donors, we believe that it is important to collaborate with those involved with family donors, to standardize the care. This document hopes to encourage increased collaboration between those caring for related and unrelated donors, and build on the extensive work, which has already been undertaken in this field to homogenize care. We recognize that there will be financial, regulatory and logistic differences in different countries and that the manner in which these principles are achieved may vary. Bone Marrow Transplantation (2010) 45, 1269-1273; doi: 10.1038/bmt.2009.354; published online 21 December 2009
引用
收藏
页码:1269 / 1273
页数:5
相关论文
共 16 条
[1]   Biologic and molecular effects of granulocyte colony-stimulating factor in healthy individuals: recent findings and current challenges [J].
Anderlini, Paolo ;
Champlin, Richard E. .
BLOOD, 2008, 111 (04) :1767-1772
[2]   Donor commitment and patient needs [J].
Bakken, R ;
van Walraven, AM ;
Egeland, T .
BONE MARROW TRANSPLANTATION, 2004, 33 (02) :225-230
[3]   Management of related donor care: a European survey [J].
Clare, S. ;
Mank, A. ;
Stone, R. ;
Davies, M. ;
Potting, C. ;
Apperley, J. F. .
BONE MARROW TRANSPLANTATION, 2010, 45 (01) :97-101
[4]   Bone-marrow donation by mentally incapable adults [J].
Clark, RE .
LANCET, 1998, 352 (9143) :1847-1848
[5]  
Delany L, 1996, BRIT MED J, V312, P240
[6]   Possible harmful effects of short course granulocyte colony-stimulating factor in normal donors [J].
Goldman, John M. ;
Madrigal, J. Alejandro ;
Pamphilon, Derwood .
BRITISH JOURNAL OF HAEMATOLOGY, 2006, 135 (05) :651-652
[7]   Severe events in donors after allogeneic hematopoietic stem cell donation [J].
Halter, Joerg ;
Kodera, Yoshihisa ;
Ispizua, Alvaro Urbano ;
Greinix, Hildegard T. ;
Schmitz, Norbert ;
Favre, Genevieve ;
Baldomero, Helen ;
Niederwieser, Dietger ;
Apperley, Jane F. ;
Gratwohl, Alois .
HAEMATOLOGICA-THE HEMATOLOGY JOURNAL, 2009, 94 (01) :94-101
[8]  
HASENCLEVER D, 1996, BONE MARROW TRANS S2, V17, P28
[9]  
KING R, UNRELATED HEMA UNPUB
[10]   Identifying support issues of parents of children with leukemia [J].
McGrath, P .
CANCER PRACTICE, 2001, 9 (04) :198-205