Assessing health status quality of life in ALS:: Comparison of the SIP/ALS-19 with the ALS functional rating scale and the short form-12 health survey™

被引：13

作者：

Bromberg, MB

Anderson, F

Davidson, M

Miller, RG

机构：

[1] Univ Utah, Dept Neurol, Salt Lake City, UT 84132 USA

[2] Univ Massachusetts, Ctr Outcomes Res, Amherst, MA 01003 USA

[3] Calif Pacific Med Ctr, Dept Neurol, Pacific Grove, CA USA

来源：

AMYOTROPHIC LATERAL SCLEROSIS | 2001年 / 2卷 / 01期

关键词：

amyotrophic lateral sclerosis; ALS; quality of life;

D O I：

10.1080/146608201300079391

中图分类号：

R74 [神经病学与精神病学];

学科分类号：

摘要：

BACKGROUND: The progressive loss of function affects the quality of life of the ALS patient. Quality of life depends on a spectrum of factors. Available instruments for assessment include questionnaires developed for generic illness-related disabilities and ALS-specific questionnaires that focus on function. METHODS: Comparisons were made between two ALS-specific questionnaires (ALS Functional Rating Scale and SIP/ALS-19) and a generic instrument (Short Form-12) given to 1513 patients from the (North American) ALS Patient Care Database. RESULTS: The SIP/ALS-19 correlates well with the ALS Functional Rating Scale and less well with the Short Form-12. CONCLUSIONS: The SIP/ALS-19 can be used as an effective surrogate for the ALS Functional Rating Scale, with the advantage that the SIP/ALS-19 also includes questions that encompass the psychological and social domains of quality of life.

引用

页码：31 / 37

页数：7

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