The experience of caring for a family member with Alzheimer's disease

被引：55
作者：
Butcher, HK [1 ]
Holkup, PA [1 ]
Buckwalter, KC [1 ]
机构：
[1] Univ Iowa, Coll Nursing, Off Provost, Iowa City, IA 52242 USA
来源：
WESTERN JOURNAL OF NURSING RESEARCH | 2001年 / 23卷 / 01期
关键词：
D O I：
10.1177/01939450122044943
中图分类号：
R47 [护理学];
学科分类号：
1011 ;
摘要：
The purpose of this phenomenological study was to describe the experience of caring for a family member with Alzheimer's disease or related disorder (ADRD) living at home among a diverse sample of 103 family caregivers. The study involved secondary analysis of in-depth transcribed interview data using van Kaam's rigorous four phase, 12-step psychophenomenological method. A total of 2, 115 descriptive expressions were categorized into 38 preliminary structural elements. Eight essential structural elements emerged from an analysis of the preliminary structural elements. The eight elements were then synthesized to form the following synthetic structural definition: Caring for a family member living at home with ADRD was experienced as "being immersed in caregiving; enduring stress and frustration; suffering through the losses; integrating ADRD into our lives and preserving integrity; gathering support; moving with continuous change; and finding meaning and joy.".
引用
收藏
页码：33 / 55
页数：23
相关论文
共 63 条
[11]   Male caregivers' use of formal support [J].
Coe, M ;
Neufeld, A .
WESTERN JOURNAL OF NURSING RESEARCH, 1999, 21 (04) :568-588
[12]   FACTORS DETERMINING THE DECISION TO INSTITUTIONALIZE DEMENTING INDIVIDUALS - A PROSPECTIVE-STUDY [J].
COHEN, CA ;
GOLD, DP ;
SHULMAN, KI ;
WORTLEY, JT ;
MCDONALD, G ;
WARGON, M .
GERONTOLOGIST, 1993, 33 (06) :714-720
[13]   DEPRESSION IN FAMILY MEMBERS CARING FOR A RELATIVE WITH ALZHEIMERS-DISEASE [J].
COHEN, D ;
EISDORFER, C .
JOURNAL OF THE AMERICAN GERIATRICS SOCIETY, 1988, 36 (10) :885-889
[14]   MANAGEMENT DECISIONS MADE BY CAREGIVER SPOUSES OF PERSONS WITH ALZHEIMERS-DISEASE [J].
CORCORAN, MA .
AMERICAN JOURNAL OF OCCUPATIONAL THERAPY, 1994, 48 (01) :38-45
[15]   Trends in the content and methodology of Alzheimer caregiving research [J].
Drebing, CE .
ALZHEIMER DISEASE & ASSOCIATED DISORDERS, 1999, 13 :S93-S100
[16]   THE AGING ENTERPRISE REVISITED [J].
ESTES, CL .
GERONTOLOGIST, 1993, 33 (03) :292-298
[17]  
Farran C J, 1991, NLN Publ, P225
[18]  
Farran C J, 1993, Clin Nurs Res, V2, P86, DOI 10.1177/105477389300200108
[19]   FINDING MEANING - AN ALTERNATIVE PARADIGM FOR ALZHEIMERS-DISEASE FAMILY CAREGIVERS [J].
FARRAN, CJ ;
KEANEHAGERTY, E ;
SALLOWAY, S ;
KUPFERER, S ;
WILKEN, CS .
GERONTOLOGIST, 1991, 31 (04) :483-489
[20]   Theoretical perspectives concerning positive aspects of caring for elderly persons with dementia: Stress/adaptation and existentialism [J].
Farran, CJ .
GERONTOLOGIST, 1997, 37 (02) :250-256
1234567