Development and implementation of a patient reported outcome intervention (QLIC-ON PROfile) in clinical paediatric oncology practice

被引：41

作者：

Engelen, Vivian ^{[1
]}

Haverman, Lotte ^{[1
]}

Koopman, Hendrik

Schouten-van Meeteren, Netteke ^{[2
]}

Meijer-van den Bergh, Esther ^{[3
]}

Vrijmoet-Wiersma, Jantien ^{[4
]}

van Dijk, Elisabeth Maria ^{[5
]}

Last, Bob ^{[1
]}

Detmar, Symone ^{[6
]}

Grootenhuis, Martha ^{[1
]}

机构：

[1] Univ Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Paediat Psychosocial Dept, NL-1105 AZ Amsterdam, Netherlands

[2] Univ Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Dept Paediat Oncol, NL-1105 AZ Amsterdam, Netherlands

[3] Radboud Univ Nijmegen Med Ctr, Dept Paediat Oncol, Nijmegen, Netherlands

[4] Leiden Univ, Med Ctr, Dept Paediat Oncol, Leiden, Netherlands

[5] Vrije Univ Amsterdam Med Ctr, Dept Paediat Oncol, Amsterdam, Netherlands

[6] TNO Prevent & Hlth, Leiden, Netherlands

来源：

PATIENT EDUCATION AND COUNSELING | 2010年 / 81卷 / 02期

关键词：

Patient reported outcome (PRO); Health related quality of life (HRQOL); Paediatric oncology; Clinical practice; Physician-patient communication; Development and implementation; QUALITY-OF-LIFE; GENERIC CORE SCALES; HEALTH; IMPACT; CANCER; COMMUNICATION; RELIABILITY; ASSESSMENTS; PEDSQL(TM); CHILDREN;

D O I：

10.1016/j.pec.2010.02.003

中图分类号：

R1 [预防医学、卫生学];

学科分类号：

1004 ; 120402 ;

摘要：

Objective: The use of patient reported outcomes (PRO) in routine clinical practice is becoming increasingly common, but there is limited knowledge about the development and implementation of PRO. The objective of the current paper is to provide a thorough description of the development and implementation of a PRO on health related quality of life (HRQOL) - the QLIC-ON PROfile - in clinical paediatric oncology practice. Methods: The development of the QLIC-ON PROfile is explained by elucidating important choices: the HRQOL instrument, the professional that uses the QLIC-ON PROfile, the optimal form of HRQOL feedback and whether or not a clinically important difference is reported. The description of the implementation of the QLIC-ON PROfile focuses on the education and commitment of the professional that uses the QLIC-ON PROfile. Study design and outcome measures are also elaborated on. Results: Important considerations regarding the development and implementation of PRO interventions are reported. These considerations have also resulted in educational material. Conclusion: Our study adds to current knowledge of PRO research. This paper can be used as a practical guide for researchers and other professionals, who are interested in setting up PRO interventions in any clinical setting. (C) 2010 Elsevier Ireland Ltd. All rights reserved.

引用

页码：235 / 244

页数：10

共 42 条

[1] A SCALE TO MEASURE PHYSICIAN BELIEFS ABOUT PSYCHOSOCIAL-ASPECTS OF PATIENT-CARE [J].