Prenatal screening for Down syndrome: a survey of willingness in women and family physicians to engage in shared decision-making

被引:47
作者
Legare, France [1 ,2 ,4 ]
St-Jacques, Sylvie [1 ]
Gagnon, Susie [1 ]
Njoya, Merlin [1 ]
Brisson, Michel [2 ]
Fremont, Pierre [3 ]
Rousseau, Francois [1 ,4 ,5 ]
机构
[1] Hop St Francois Assise, CHUQ Res Ctr, Quebec City, PQ G1L 3L5, Canada
[2] Univ Laval, Fac Med, Dept Family Med & Emergency Med, Quebec City, PQ G1K 7P4, Canada
[3] Univ Laval, Fac Med, Dept Rehabil, Quebec City, PQ G1K 7P4, Canada
[4] CanGeneTest Res Consortium Genet Lab Serv, Quebec City, PQ, Canada
[5] Univ Laval, Fac Med, Dept Med Biol, Quebec City, PQ G1K 7P4, Canada
基金
加拿大健康研究院;
关键词
shared decision-making; prenatal screening; Down syndrome; patient involvement in decision-making; theory of planned behavior; PLANNED BEHAVIOR; RANDOMIZED-TRIAL; FOLLOW-UP; INTENTION; CONFLICT; AIDS; CARE;
D O I
10.1002/pd.2624
中图分类号
Q3 [遗传学];
学科分类号
071007 ; 090102 ;
摘要
Objective To assess the willingness of women and their family physicians (FPs) to engage in shared decision-making (SDM) as regards prenatal Down-syndrome screening and the factors that might influence their willingness to do so. Methods We conducted a survey of participants in Quebec City, Canada, using the theory of planned behavior. We used a general linear model and multilevel approach that took the fact that some women consulted the same FP into account. Results This study comprised 109 pregnant women and 41 FPs. On a scale of -3 to +3, the pregnant women's and FPs' response scores were, respectively, 2.11 +/- 1.38 and 2.66 +/- 0.40. In women, attitude, significant others, self-efficacy, perceived moral correctness, and their FP's attitude influenced their willingness to engage in SDM. However, women without a post-secondary education were less likely to engage in SDM than women with a post-secondary education, mostly because the former lacked a sense of self-efficacy. In FPs, only attitude and significant others influenced their willingness to engage in SDM. Conclusion Overall, the women and their FPs wished to engage in SDM as regards prenatal Down-syndrome screening. Only a few factors influenced this desire which therefore may be modifiable. Copyright (C) 2011 John Wiley & Sons, Ltd.
引用
收藏
页码:319 / 326
页数:8
相关论文
共 37 条
[1]  
[Anonymous], CLIN EV MUCH DO WE K
[2]  
[Anonymous], 1988, Attitudes, Personality and Behaviour, DOI DOI 10.1016/S0065-2601(08)60411-6
[3]   Long-term effects of a shared decision-making intervention on physician-patient interaction and outcome in fibromyalgia - A qualitative and quantitative 1 year follow-up of a randomized controlled trial [J].
Bieber, Christiane ;
Mueller, Knut Georg ;
Blumenstiel, Klaus ;
Schneider, Antonius ;
Richter, Angelika ;
Wilke, Stefanie ;
Hartmann, Mechthild ;
Eich, Wolfgang .
PATIENT EDUCATION AND COUNSELING, 2006, 63 (03) :357-366
[4]   Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model [J].
Charles, C ;
Gafni, A ;
Whelan, T .
SOCIAL SCIENCE & MEDICINE, 1999, 49 (05) :651-661
[5]   Extending the theory of planned behavior: A review and avenues for further research [J].
Conner, M ;
Armitage, CJ .
JOURNAL OF APPLIED SOCIAL PSYCHOLOGY, 1998, 28 (15) :1429-1464
[6]  
Degner L F, 1997, Can J Nurs Res, V29, P21
[7]   The OPTION scale: measuring the extent that clinicians involve patients in decision-making tasks [J].
Elwyn, G ;
Hutchings, H ;
Edwards, A ;
Rapport, F ;
Wensing, M ;
Cheung, WY ;
Grol, R .
HEALTH EXPECTATIONS, 2005, 8 (01) :34-42
[8]   Achieving involvement: process outcomes from a cluster randomized trial of shared decision making skill development and use of risk communication aids in general practice [J].
Elwyn, G ;
Edwards, A ;
Hood, K ;
Robling, M ;
Atwell, C ;
Russell, I ;
Wensing, M ;
Grol, R .
FAMILY PRACTICE, 2004, 21 (04) :337-346
[9]   Adjuncts or adversaries to shared decision-making? Applying the Integrative Model of behavior to the role and design of decision support interventions in healthcare interactions [J].
Frosch, Dominick L. ;
Legare, France ;
Fishbein, Martin ;
Elwyn, Glyn .
IMPLEMENTATION SCIENCE, 2009, 4
[10]   Using decision aids in community-based primary care: A theory-driven evaluation with ethnically diverse patients [J].
Frosch, Dominick L. ;
Legare, France ;
Mangione, Carol M. .
PATIENT EDUCATION AND COUNSELING, 2008, 73 (03) :490-496