The impact of COVID-19 on patient engagement in the health system: Results from a Pan-Canadian survey of patient, family and caregiver partners

被引:14
作者
Tripp, Laura [1 ]
Vanstone, Meredith [2 ,3 ]
Canfield, Carolyn [4 ,5 ]
Leslie, Myles [6 ,7 ]
Levasseur, Mary Anne [4 ]
Panday, Janelle [2 ]
Rowland, Paula [8 ,9 ]
Wilson, Geoff [10 ]
You, Jeonghwa [1 ]
Abelson, Julia [1 ,3 ]
机构
[1] McMaster Univ, Dept Hlth Res Methods Evidence & Impact, CRL Bldg Room 202,1280 Main St West, Hamilton, ON L8S 4K1, Canada
[2] McMaster Univ, Dept Family Med, Hamilton, ON, Canada
[3] McMaster Univ, Ctr Hlth Econ & Policy Anal CHEPA, Hamilton, ON, Canada
[4] Patient Advisors Network PAN, Vancouver, BC, Canada
[5] Univ British Columbia, Dept Family Practice, Vancouver, BC, Canada
[6] Univ Calgary, Sch Publ Policy, Calgary, AB, Canada
[7] Univ Calgary, Cumming Sch Med, Dept Community Hlth Sci, Calgary, AB, Canada
[8] Univ Toronto, Temetry Fac Med, Dept Occupat Sci & Occupat Therapy, Toronto, ON, Canada
[9] Univ Toronto, Wilson Ctr, Univ Hlth Network, Toronto, ON, Canada
[10] Nova Scotia Hlth Author, Halifax, NS, Canada
基金
加拿大健康研究院;
关键词
COVID-19; patient engagement; patient involvement;
D O I
10.1111/hex.13421
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Introduction The COVID-19 pandemic has had an impact on all aspects of the health system. Little is known about how the activities and experiences of patient, family and caregiver partners, as a large group across a variety of settings within the health system, changed due to the substantial health system shifts catalysed by the pandemic. This paper reports on the results of a survey that included questions about this topic. Methods Canadian patient, family and caregiver partners were invited to participate in an online anonymous survey in the Fall of 2020. A virtual snowballing approach to recruitment was used. Survey invitations were shared on social media and emailed to health system and governmental organizations with the request that they share the survey with patient partners. This paper focuses on responses to two questions related to patient partner experiences during the COVID-19 pandemic. Results The COVID-19 questions were completed by 533 respondents. Over three quarters of respondents (77.9%, n = 415) indicated their patient engagement activities had been impacted by COVID-19. The majority (62.5%, n = 230) experienced at least a temporary or partial reduction in their patient engagement activities. Some respondents did see increases in their patient engagement activities (11.4%, n = 42). Many respondents provided insights into their experience with virtual platforms for engagement (n = 194), most expressed negative or mixed experiences with this shift. Conclusions This study provides a snapshot of Canadian patient, family and caregiver partners' perspectives on the impact of COVID-19 on their engagement activities. Understanding how engagement unfolded during a crisis is critical for our future planning if patient engagement is to be fully integrated into the health system. Identifying how patient partners were engaged and not engaged during this time period, as well as the benefits and challenges of virtual engagement opportunities, offers instructive lessons for sustaining patient engagement, including the supports needed to engage with a more diverse set of patient, family and caregiver partners. Patient Contribution Patient partners were important members of the Canadian Patient Partner Study research team. They were engaged from the outset, participating in all stages of the research project. Additional patient partners were engaged to develop and pilot test the survey, and all survey respondents were patient, family or caregiver partners. The manuscript is coauthored by two patient partners.
引用
收藏
页码:744 / 753
页数:10
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