The Reactions of Adolescents, Parents and Clinicians to Participating in Qualitative Research Interviews Regarding Adolescents Bereaved by Suicide and Other Traumatic Death

被引:4
作者
Andriessen, Karl [1 ]
Krysinska, Karolina [1 ]
Rickwood, Debra [2 ]
Pirkis, Jane [1 ]
机构
[1] Univ Melbourne, Ctr Mental Hlth, Melbourne Sch Populat & Global Hlth, Parkville, Vic 3010, Australia
[2] Univ Canberra, Fac Hlth, Canberra, ACT 2617, Australia
基金
英国医学研究理事会;
关键词
grief; bereavement; suicide; traumatic death; research participation; ethics; research ethics; ETHICAL-ISSUES; PSYCHOLOGICAL AUTOPSY; MENTAL-HEALTH; EXPERIENCES; RECRUITMENT; CHALLENGES; SIBLINGS; BENEFITS; VIOLENCE; HELPFUL;
D O I
10.3390/ijerph19010452
中图分类号
X [环境科学、安全科学];
学科分类号
08 ; 0830 ;
摘要
There are concerns that involving adolescents bereaved by suicide and other traumatic death in research may cause distress and harm. However, no study has investigated such bereaved adolescents' research experiences. In addition, no study has looked at the experiences of parents and clinicians as participants in adolescent suicide and traumatic death bereavement research. This study aimed to explore the short-term impact of research participation experienced by adolescents, parents, and clinicians. A total of 61 participants (adolescents, n = 17; parents, n = 12; clinicians, n = 32) filled out a short survey within two weeks of having taken part in a qualitative interview study. Data were analyzed descriptively. Most participants had experienced no distress while participating and no negative effects of participating; rather, participation was experienced as helpful for them and they would highly recommend participating in a study like this to others. A few adolescents and parents reported some distress, related to anxiety about participation and the unpleasantness of grief memories. The study clearly indicates that bereaved adolescents, parents and clinicians can safely participate in research interviews regarding their experiences of grief and help after suicide, generally valuing the opportunity to share their experience. To prevent and mitigate potential distress, training of research staff and implementation of appropriate participant distress protocols are imperative. Future studies could include longitudinal follow-up of participants to assess any longer-term consequences.
引用
收藏
页数:13
相关论文
共 70 条
  • [1] Factors affecting recruitment and participation of bereaved parents and siblings in grief research
    Akard, Terrah Foster
    Gilmer, Mary Jo
    Miller, Katy
    Steele, Amii Corbisiero
    Hancock, Kelly
    Barrera, Maru
    Compas, Bruce
    Davies, Betty
    Dietrich, Mary S.
    Fairclough, Diane L.
    Hogan, Nancy S.
    Vannatta, Kathryn
    Gerhardt, Cynthia A.
    [J]. PROGRESS IN PALLIATIVE CARE, 2014, 22 (02) : 75 - 79
  • [2] "Finding a safe space": A qualitative study of what makes help helpful for adolescents bereaved by suicide
    Andriessen, Karl
    Krysinska, Karolina
    Rickwood, Debra
    Pirkis, Jane
    [J]. DEATH STUDIES, 2022, 46 (10) : 2456 - 2466
  • [3] "It Changes Your Orbit": The Impact of Suicide and Traumatic Death on Adolescents as Experienced by Adolescents and Parents
    Andriessen, Karl
    Krysinska, Karolina
    Rickwood, Debra
    Pirkis, Jane
    [J]. INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, 2020, 17 (24) : 1 - 18
  • [4] Ethical Concerns in Suicide Research: Results of an International Researcher Survey
    Andriessen, Karl
    Reifels, Lennart
    Krysinska, Karolina
    Robinson, Jo
    Dempster, Georgia
    Pirkis, Jane
    [J]. JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS, 2019, 14 (04) : 383 - 394
  • [5] Dealing with Ethical Concerns in Suicide Research: A Survey of Australian Researchers
    Andriessen, Karl
    Reifels, Lennart
    Krysinska, Karolina
    Robinson, Jo
    Dempster, Georgia
    Pirkis, Jane
    [J]. INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, 2019, 16 (07)
  • [6] Harmful or Helpful? A Systematic Review of How Those Bereaved Through Suicide Experience Research Participation
    Andriessen, Karl
    Krysinska, Karolina
    Draper, Brian
    Dudley, Michael
    Mitchell, Philip B.
    [J]. CRISIS-THE JOURNAL OF CRISIS INTERVENTION AND SUICIDE PREVENTION, 2018, 39 (05) : 364 - 376
  • [7] "Don't bother about me." The grief and mental health of bereaved adolescents
    Andriessen, Karl
    Mowll, Jane
    Lobb, Elizabeth
    Draper, Brian
    Dudley, Michael
    Mitchell, Philip B.
    [J]. DEATH STUDIES, 2018, 42 (10) : 607 - 615
  • [8] [Anonymous], 2018, NAT HLTH MED RES COU
  • [9] Adolescents' and Adults' Experiences of Being Surveyed About Violence and Abuse: A Systematic Review of Harms, Benefits, and Regrets
    Appollis, Tracy McClinton
    Lund, Crick
    de Vries, Petrus J.
    Mathews, Catherine
    [J]. AMERICAN JOURNAL OF PUBLIC HEALTH, 2015, 105 (02) : E31 - E45
  • [10] Posttraumatic growth in parentally bereaved children and adolescents: A systematic review
    Arslan, Buket Simsek
    Ozer, Zeynep
    Buldukoglu, Kadriye
    [J]. DEATH STUDIES, 2022, 46 (01) : 111 - 123