Transition from Pediatric to Adult Care for Adolescents and Young Adults with a Disorder of Sex Development

被引:19
作者
Hullmann, Stephanie E. [1 ]
Chalmers, Laura J. [2 ]
Wisniewski, Amy B. [3 ]
机构
[1] Oklahoma State Univ, Dept Psychol, Stillwater, OK 74078 USA
[2] Univ Oklahoma, Tulsa Med Coll, Dept Pediat, Tulsa, OK USA
[3] Univ Oklahoma, Hlth Sci Ctr, Dept Urol, Oklahoma City, OK USA
关键词
Disorders of sex development; Transition; Adolescence; DSD; Intersex; Congenital adrenal hyperplasia; CONGENITAL ADRENAL-HYPERPLASIA; POSITION PAPER; HEALTH-CARE; SOCIETY; MANAGEMENT;
D O I
10.1016/j.jpag.2011.11.003
中图分类号
R71 [妇产科学];
学科分类号
100211 ;
摘要
Over the past twenty years, there has been an increasing awareness of the transition to adult-oriented health care in adolescents and young adults with a chronic illness. While general guidelines for health care transition have been established, some have called for illness-specific guidelines which are tailored to the needs of specific illness populations. The current paper sought to outline illness-specific guidelines for health care transition in adolescents and young adults with disorders of sex development based upon the recent American Academy of Pediatrics guidelines. We also suggest indicators of successful transition for adolescents and young adults with disorders of sex development as well as areas for future research.
引用
收藏
页码:155 / 157
页数:3
相关论文
共 14 条
[1]   Clinical Report-Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home [J].
Cooley W.C. ;
Sagerman P.J. ;
Barr M.S. ;
Ciccarelli M. ;
Hergenroeder A.C. ;
Klitzner T.S. ;
Mann M. ;
Pickler L. ;
Strickland B. ;
Thompson B. ;
Weinberg S.T. ;
White P.H. ;
Wilkie N.C. ;
Skipper S.M. ;
Brin A. ;
Flinn S.K. .
PEDIATRICS, 2011, 128 (01) :182-+
[2]   TRANSITION FROM CHILD-CENTERED TO ADULT HEALTH-CARE SYSTEMS FOR ADOLESCENTS WITH CHRONIC CONDITIONS - A POSITION PAPER OF THE SOCIETY FOR ADOLESCENT MEDICINE [J].
BLUM, RW ;
GARELL, D ;
HODGMAN, CH ;
JORISSEN, TW ;
OKINOW, NA ;
ORR, DP ;
SLAP, GB .
JOURNAL OF ADOLESCENT HEALTH, 1993, 14 (07) :570-576
[3]   Holistic management of DSD [J].
Brain, Caroline E. ;
Creighton, Sarah M. ;
Mushtaq, Imran ;
Carmichael, Polly A. ;
Barnicoat, Angela ;
Honour, John W. ;
Larcher, Victor ;
Achermann, John C. .
BEST PRACTICE & RESEARCH CLINICAL ENDOCRINOLOGY & METABOLISM, 2010, 24 (02) :335-354
[4]   Indicators of transition success for youth living with HIV: perspectives of pediatric and adult infectious disease care providers [J].
Fair, Cynthia D. ;
Sullivan, Kristen ;
Gatto, Amy .
AIDS CARE-PSYCHOLOGICAL AND SOCIO-MEDICAL ASPECTS OF AIDS/HIV, 2011, 23 (08) :965-970
[5]   Congenital adrenal hyperplasia: transitional care [J].
Hughes, IA .
GROWTH HORMONE & IGF RESEARCH, 2004, 14 :S60-S66
[6]   Congenital adrenal hyperplasia -: How to improve the transition from adolescence to adult life [J].
Kruse, B ;
Riepe, FG ;
Krone, N ;
Bosinski, HAG ;
Kloehn, S ;
Partsch, CJ ;
Sippell, WG ;
Mönig, H .
EXPERIMENTAL AND CLINICAL ENDOCRINOLOGY & DIABETES, 2004, 112 (07) :343-355
[7]   Consensus statement on management of intersex disorders [J].
Lee, Peter A. ;
Houk, Christopher P. ;
Ahmed, S. Faisal ;
Hughes, Ieuan A. .
PEDIATRICS, 2006, 118 (02) :E488-E500
[8]   Adolescent girls with disorders of sex development: A needs analysis of transitional care [J].
Liao, Lih-Mei ;
Tacconelli, Erasmo ;
Wood, Dan ;
Conway, Gerard ;
Creighton, Sarah M. .
JOURNAL OF PEDIATRIC UROLOGY, 2010, 6 (06) :609-613
[9]   Transition to adult health care for adolescents and young adults with chronic conditions - Position paper of the Society for Adolescent Medicine [J].
Rosen, DS ;
Blum, RW ;
Britto, M ;
Sawyer, SM ;
Siegel, DM .
JOURNAL OF ADOLESCENT HEALTH, 2003, 33 (04) :309-311
[10]   An Evidence-Based Model of Multidisciplinary Care for Patients and Families Affected by Classical Congenital Adrenal Hyperplasia due to 21-Hydroxylase Deficiency [J].
Schaeffer, Traci L. ;
Tryggestad, Jeanie B. ;
Mallappa, Ashwini ;
Hanna, Adam E. ;
Krishnan, Sowmya ;
Chernausek, Steven D. ;
Chalmers, Laura J. ;
Reiner, WilliamG. ;
Kropp, Brad P. ;
Wisniewski, Amy B. .
INTERNATIONAL JOURNAL OF PEDIATRIC ENDOCRINOLOGY, 2010,