The ethical implications of paradoxical lucidity in persons with dementia

被引:10
作者
Ney, David B. [1 ,2 ]
Peterson, Andrew [2 ,3 ]
Karlawish, Jason [2 ,4 ,5 ,6 ]
机构
[1] Thomas Jefferson Univ, Sidney Kimmel Med Coll, 1025 Walnut St, Philadelphia, PA 19107 USA
[2] Penn Memory Ctr, Penn Program Precis Med Brain, Philadelphia, PA USA
[3] George Mason Univ, Inst Philosophy & Publ Policy, Dept Philosophy, Fairfax, VA 22030 USA
[4] Univ Penn, Perelman Sch Med, Dept Med, Penn Memory Ctr, Philadelphia, PA 19104 USA
[5] Univ Penn, Perelman Sch Med, Dept Med Eth & Hlth Policy, Penn Memory Ctr, Philadelphia, PA 19104 USA
[6] Univ Penn, Perelman Sch Med, Dept Neurol, Penn Memory Ctr, Philadelphia, PA 19104 USA
关键词
caregiver; dementia; ethics; family; personhood; TERMINAL LUCIDITY; AMBIGUOUS LOSS;
D O I
10.1111/jgs.17484
中图分类号
R592 [老年病学]; C [社会科学总论];
学科分类号
03 ; 0303 ; 100203 ;
摘要
This case report describes the ethical implications of paradoxical lucidity in persons with severe stage dementia. Paradoxical lucidity describes an episode of unexpected communication or connectedness in a person who is believed to be noncommunicative due to a progressive and pathological process that causes dementia. A caregiver who witnesses an event of paradoxical lucidity may experience it as ethically and emotionally transformative. We provide an ethical framework for addressing this event in clinical practice. The framework addresses clinician interactions with the patient, caregiver, and family to improve understanding of paradoxical lucidity and to enhance patient care, caregiver well-being, and decision-making. Participants for this case study consented to having the case published. Participant names are changed to protect confidentiality.
引用
收藏
页码:3617 / 3622
页数:6
相关论文
共 25 条
[1]   Spontaneous Remission of Dementia Before Death: Results From a Study on Paradoxical Lucidity [J].
Batthyany, Alexander ;
Greyson, Bruce .
PSYCHOLOGY OF CONSCIOUSNESS-THEORY RESEARCH AND PRACTICE, 2021, 8 (01) :1-8
[2]   Dimensions of ambiguous loss in couples coping with mild cognitive impairment [J].
Blieszner, Rosemary ;
Roberto, Karen A. ;
Wilcox, Karen L. ;
Barham, Elizabeth J. ;
Winston, Brianne L. .
FAMILY RELATIONS, 2007, 56 (02) :196-209
[3]  
Bright R., 1992, CARE GIVING DEMENTIA, V1, P162
[4]  
Brodaty Henry, 2009, Dialogues Clin Neurosci, V11, P217
[5]   Decisional conflict among Chinese family caregivers regarding nursing home placement of older adults with dementia [J].
Chang, Yu-Ping ;
Schneider, Joanne Kraenzle ;
Sessanna, Loralee .
JOURNAL OF AGING STUDIES, 2011, 25 (04) :436-444
[6]   Are we explaining consciousness yet? [J].
Dennett, D .
COGNITION, 2001, 79 (1-2) :221-237
[7]  
Doherty W.J., 1993, SOURCEBOOK FAMILY TH, DOI DOI 10.1007/978-0-387-85764-0_1
[8]   Caregiver burden among dementia patient caregivers: A review of the literature [J].
Etters, Lynn ;
Goodall, Debbie ;
Harrison, Barbara E. .
JOURNAL OF THE AMERICAN ACADEMY OF NURSE PRACTITIONERS, 2008, 20 (08) :423-428
[9]  
Kitwood Tom, 1992, Ageing Soc, V12, P269, DOI 10.1017/S0144686X0000502X
[10]  
Klein E., 2010, PRINCIPLES PRACTICE, P410, DOI [10.1002/9780470669600.ch65, DOI 10.1002/9780470669600.CH65]