Privacy in the age of medical big data

被引:692
作者
Price, W. Nicholson [1 ,2 ,3 ]
Cohen, I. Glenn [2 ,3 ,4 ]
机构
[1] Univ Michigan, Law Sch, Ann Arbor, MI 48109 USA
[2] Petrie Flom Ctr Hlth Law Policy Biotechnol & Bioe, Project Personalized Med Artificial Intelligence, Cambridge, MA 02138 USA
[3] Univ Copenhagen, Ctr Adv Studies Biomed Innovat Law, Copenhagen, Denmark
[4] Harvard Law Sch, Cambridge, MA 02138 USA
关键词
HEALTH; LEGAL; SYSTEM;
D O I
10.1038/s41591-018-0272-7
中图分类号
Q5 [生物化学]; Q7 [分子生物学];
学科分类号
071010 ; 081704 ;
摘要
Big data has become the ubiquitous watch word of medical innovation. The rapid development of machine-learning techniques and artificial intelligence in particular has promised to revolutionize medical practice from the allocation of resources to the diagnosis of complex diseases. But with big data comes big risks and challenges, among them significant questions about patient privacy. Here, we outline the legal and ethical challenges big data brings to patient privacy. We discuss, among other topics, how best to conceive of health privacy; the importance of equity, consent, and patient governance in data collection; discrimination in data uses; and how to handle data breaches. We close by sketching possible ways forward for the regulatory system.
引用
收藏
页码:37 / 43
页数:7
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