SUPPORT GROUP FOR PARENTS COPING WITH CHILDREN WITH TYPE 1 DIABETES

被引:9
作者
Pate, Tanja [1 ,2 ]
Rutar, Miha [3 ]
Battelino, Tadej [3 ,4 ]
Radobuljac, Maja Drobnic [5 ]
Bratina, Natasa [3 ]
机构
[1] Univ Ljubljana, Fac Theol, Ljubljana 1000, Slovenia
[2] Franciscan Family Inst, Ljubljana 1000, Slovenia
[3] Univ Med Ctr Ljubljana, Univ Childrens Hosp, Dept Pediat Endocrinol Diabet & Metab Dis, Ljubljana 1000, Slovenia
[4] Univ Ljubljana, Fac Med, Ljubljana 1000, Slovenia
[5] Univ Psihiat Hosp Ljubljana, Unit Adolescent Psychiat, Ctr Mental Hlth, Ljubljana 1000, Slovenia
来源
ZDRAVSTVENO VARSTVO | 2015年 / 54卷 / 02期
关键词
mothers; fathers; emotional regulation; family functioning; relational family model; GLYCEMIC CONTROL; METABOLIC-CONTROL; YOUNG-CHILDREN; ADHERENCE; HYPOGLYCEMIA; ADOLESCENTS; DISORDER; ILLNESS; STRESS; CARE;
D O I
10.1515/sjph-2015-0012
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Objectives. Type 1 diabetes is one of the most common chronic diseases in childhood. Active parental involvement, parental support in the diabetes management and family functioning are associated with optimal diabetes management and glycemic control. The purpose of this study was to assess parental satisfaction with participation in the group and their perceptions of the impact of the intervention on living and coping with childrens T1D. Methods. A sample of 34 parents of children with T1D participated in this trend study. The participants' experience and satisfaction with support group was measured by a self-evaluation questionnaire, designed for the purpose of the present study. Results. Quantitative data show that parents were overall satisfied with almost all measured items of the evaluation questionnaire (wellbeing in the group, feeling secure, experiencing new things, being able to talk and feeling being heard) during the 4-year period. However, parents from the second and third season, on average, found that the support group has better fulfilled their expectations than the parents from the first season (p = 0,010). The qualitative analysis of the participants' responses to the open-ended questions was underpinned by four themes: support when confronting the diagnosis, transformation of the family dynamics, me as a parent, exchange of experience and good practice and facing the world outside the family. Discussion. The presented parent support group showed to be a promising supportive, therapeutic and psychoeducative space where parents could strengthen their role in the upbringing of their child with T1D.
引用
收藏
页码:79 / 85
页数:7
相关论文
共 33 条
  • [1] Amer Diabet Assoc, 2014, DIABETES CARE, V37, pS81, DOI [10.2337/dc13-S067, 10.2337/dc13-S011, 10.2337/dc12-s064, 10.2337/dc14-S081, 10.2337/dc10-S011, 10.2337/dc11-S062, 10.2337/dc12-s011, 10.2337/dc10-S062, 10.2337/dc11-S011]
  • [2] Family conflict, adherence, and glycaemic control in youth with short duration Type 1 diabetes
    Anderson, BJ
    Vangsness, L
    Connell, A
    Butler, D
    Goebel-Fabbri, A
    Laffel, LMB
    [J]. DIABETIC MEDICINE, 2002, 19 (08) : 635 - 642
  • [3] [Anonymous], 2003, GUIDE SOCIAL SCI STU
  • [4] [Anonymous], SISTEMSKE TEORIJE PR
  • [5] [Anonymous], SLADKORCKI VSE KAR S
  • [6] [Anonymous], 2008, Relacijska paradigma in travma
  • [7] [Anonymous], 2003, AFFECT REGULATION RE
  • [8] [Anonymous], 2011, INOVATIVNA RELACIJSK
  • [9] Family care-giving and chronic illness: how parents cope with a child with a sickle cell disorder or thalassaemia
    Atkin, K
    Ahmad, WIU
    [J]. HEALTH & SOCIAL CARE IN THE COMMUNITY, 2000, 8 (01) : 57 - 69
  • [10] Child behavior problems and family functioning as predictors of adherence and glycemic control in economically disadvantaged children with type 1 diabetes: A prospective study
    Cohen, DM
    Lumley, MA
    Naar-King, S
    Partridge, T
    Cakan, N
    [J]. JOURNAL OF PEDIATRIC PSYCHOLOGY, 2004, 29 (03) : 171 - 184