Education programs on atopic eczema. Design and first results of the German Randomized Intervention Multicenter Study

被引:28
作者
Diepgen, TL
Fartasch, M
Ring, J
Scheewe, S
Staab, D
Szcepanski, R
Werfel, T
Wahn, U
Gieler, U
机构
[1] Heidelberg Univ, Inst Klin Sozialmed Schwerpunkt Gesundheitssystem, Heidelberg, Germany
[2] Univ Erlangen Nurnberg, Dermatol Klin & Poliklin, Erlangen, Germany
[3] Tech Univ Munich, Klin & Poliklin Dermatol Allergol Biederstein, D-8000 Munich, Germany
[4] Fachklin Sylt Kinder & Jugendliche, Sylt, Germany
[5] Kinderklin, Abt Pneumonol & Immunol, Berlin, Germany
[6] Kinderhosp Osnabruck, Osnabruck, Germany
[7] Hannover Med Sch, Klin & Poliklin Dermatol & Venerol, Hannover, Germany
[8] Univ Giessen, Klin Psychosomat & Psychotherapie, Giessen, Germany
来源
HAUTARZT | 2003年 / 54卷 / 10期
关键词
atopic eczema; disease management; prevention; patient education; patient empowerment; bahavioral therapy; therapy;
D O I
10.1007/s00105-003-0613-3
中图分类号
R75 [皮肤病学与性病学];
学科分类号
100206 ;
摘要
Atopic eczema (AE) is a common, chronically relapsing, inflammatory skin disease with an early onset during infancy associated with a high loss of quality of life and socioeconomic burden. In the past few years, an Atopic Eczema Prevention Program was established to improve disease management and the quality of life of patients with atopic eczema. In Germany, the Task Force on Education Programs for Atopic Eczema (AGNES = Arbeitsgemeinschaft Neurodermitis Schulung) for children, youths, and parents was founded as well as the Task Force on Dermatological Prevention (ADP) for adults. These groups ensure structure and process quality of the prevention programs and organize train-the-trainer workshops. in a randomized prospective controlled trial (the German Randomized Intervention Multicenter Study = GRIMS),we are currently comparing the effectiveness of an atopic eczema group intervention program in (1) parents of atopic eczema children aged 0-7 years, (2) parents and children 7-12 years old,and (3) youths with AE aged between 13 and 18 years. The groups were randomized and compared with a waiting control group. The design and first results will be reported.
引用
收藏
页码:946 / 951
页数:6
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