Review of the Psoriatic Arthritis Working Group at OMERACT 12: A Report from the GRAPPA 2014 Annual Meeting

被引：5

作者：

Tillett, William ^{[1
]}

Eder, Lihi ^{[2
]}

Goel, Niti ^{[3
]}

de Wit, Maarten ^{[4
]}

Ogdie, Alexis ^{[5
]}

Orbai, Ana-Maria ^{[6
]}

Campbell, Willemina

FitzGerald, Oliver ^{[7
,8
]}

McHugh, Neil J. ^{[9
]}

Gladman, Dafna D. ^{[10
]}

Strand, Vibeke ^{[11
]}

Mease, Philip J. ^{[12
,13
]}

机构：

[1] Royal Natl Hosp Rheumat Dis, Bath BA1 1RL, Avon, England

[2] Toronto Western Hosp, Toronto, ON M5T 2S8, Canada

[3] Duke Univ, Sch Med, Durham, NC USA

[4] Vrije Univ Amsterdam Med Ctr, Amsterdam, Netherlands

[5] Univ Penn, Philadelphia, PA 19104 USA

[6] Johns Hopkins Div Rheumatol, Baltimore, MD USA

[7] Univ Coll Dublin, St Vincents Univ Hosp, Dept Rheumatol, Dublin 2, Ireland

[8] Univ Coll Dublin, Conway Inst Biomol Res, Dublin 2, Ireland

[9] Univ Bath, Dept Pharm & Pharmacol, Bath BA2 7AY, Avon, England

[10] Univ Hlth Network, Psoriat Arthrit Program, Toronto, ON, Canada

[11] Stanford Univ, Div Immunol Rheumatol, Stanford, CA 94305 USA

[12] Seattle Rheumatol Associates, Seattle, WA USA

[13] Univ Washington, Sch Med, Swedish Med Ctr, Seattle, WA USA

来源：

JOURNAL OF RHEUMATOLOGY | 2015年 / 42卷 / 06期

关键词：

PSORIATIC ARTHRITIS; OMERACT; OUTCOME MEASUREMENT; PATIENT PARTICIPATION; PATIENT PARTICIPATION; FUNCTIONAL ASSESSMENT; DISEASE-ACTIVITY; DACTYLITIS; ENTHESITIS; THERAPY; FATIGUE; JOINTS; INDEX;

D O I：

10.3899/jrheum.150131

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

At the 2014 annual meeting of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA), the psoriatic arthritis (PsA) working group of OMERACT (Outcome Measures in Rheumatology) presented a review of the progress made at the OMERACT 12 meeting, held in 2014. Members of the PsA OMERACT working group presented work from the Patient Involvement in Outcome Measures for PsA initiative to improve the incorporation of patient research partners in PsA outcomes research, the results of discussions within the OMERACT breakout groups, and finally the voting results. The OMERACT 12 participants had endorsed the need to update the PsA core set according to the Filter 2.0 framework. The breakout group discussions identified potential opportunities for revising the core set, including consolidating existing redundancy within the core set, improving incorporation of the patient perspective, and including disease effects such as fatigue as a core criterion. GRAPPA members of the OMERACT working group now have a program of research to update the core set with the goal of seeking endorsement at OMERACT 13, to be held in 2016.

引用

页码：1048 / 1051

页数：4

共 22 条

[1]

[Anonymous], 2014, OMERACT HDB

[2] The importance of patient participation in measuring rheumatoid arthritis flares [J].

Bingham, Clifton O., III ;

Alten, Rieke ;

de Wit, Maarten P. .

ANNALS OF THE RHEUMATIC DISEASES, 2012, 71 (07) :1107-1109

[3] Developing Core Outcome Measurement Sets for Clinical Trials: OMERACT Filter 2.0 [J].

Boers, Maarten ;

Kirwan, John R. ;

Wells, George ;

Beaton, Dorcas ;

Gossec, Laure ;

d'Agostino, Maria-Antonietta ;

Conaghan, Philip G. ;

Bingham, Clifton O., III ;

Brooks, Peter ;

Landewe, Robert ;

March, Lyn ;

Simon, Lee S. ;

Singh, Jasvinder A. ;

Strand, Vibeke ;

Tugwell, Peter .

JOURNAL OF CLINICAL EPIDEMIOLOGY, 2014, 67 (07) :745-753

[4] Functional assessment of chronic illness therapy-fatigue scale is valid in patients with psoriatic arthritis [J].

Chandran, Vinod ;

Bhella, Sita ;

Schentag, Catherine ;

Gladman, Dafna D. .

ANNALS OF THE RHEUMATIC DISEASES, 2007, 66 (07) :936-939

[5] International Multicenter Psoriasis and Psoriatic Arthritis Reliability Trial for the Assessment of Skin, Joints, Nails, and Dactylitis [J].

Chandran, Vinod ;

Gottlieb, Alice ;

Cook, Richard J. ;

Duffin, Kristina Callis ;

Garg, Amit ;

Helliwell, Philip ;

Kavanaugh, Arthur ;

Krueger, Gerald G. ;

Langley, Richard G. ;

Lynde, Charles ;

McHugh, Neil ;

Mease, Philip ;

Olivieri, Ignazio ;

Rahman, Proton ;

Rosen, Cheryl F. ;

Salvarani, Carlo ;

Thaci, Diamant ;

Toloza, Sergio M. A. ;

Wong, Maxine Yat Wing ;

Zhou, Qian M. ;

Gladman, Dafna D. .

ARTHRITIS & RHEUMATISM-ARTHRITIS CARE & RESEARCH, 2009, 61 (09) :1235-1242

[6] Development of a Disease Activity and Responder Index for Psoriatic Arthritis - Report of the Psoriatic Arthritis Module at OMERACT 11 [J].

Coates, Laura C. ;

FitzGerald, Oliver ;

Mease, Philip J. ;

Gladman, Dafna D. ;

Strand, Vibeke ;

Goel, Niti ;

Campbell, Ina ;

Krueger, Gerald ;

McHugh, Neil J. ;

Helliwell, Philip S. .

JOURNAL OF RHEUMATOLOGY, 2014, 41 (04) :782-791

[7] Reduced Joint Counts Misclassify Patients With Oligoarticular Psoriatic Arthritis and Miss Significant Numbers of Patients With Active Disease [J].

Coates, Laura C. ;

FitzGerald, Oliver ;

Gladman, Dafna D. ;

McHugh, Neil ;

Mease, Philip ;

Strand, Vibeke ;

Helliwell, Philip S. .

ARTHRITIS AND RHEUMATISM, 2013, 65 (06) :1504-1509

[8] European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects [J].

de Wit, M. P. T. ;

Berlo, S. E. ;

Aanerud, G. J. ;

Aletaha, D. ;

Bijlsma, J. W. ;

Croucher, L. ;

Da Silva, J. A. P. ;

Gluesing, B. ;

Gossec, L. ;

Hewlett, S. ;

Jongkees, M. ;

Magnusson, D. ;

Scholte-Voshaar, M. ;

Richards, P. ;

Ziegler, C. ;

Abma, T. A. .

ANNALS OF THE RHEUMATIC DISEASES, 2011, 70 (05) :722-726

[9] Building Bridges between Researchers and Patient Research Partners: A Report from the GRAPPA 2014 Annual Meeting [J].

de Wit, Maarten ;

Campbell, Willemina ;

Orbai, Ana-Maria ;

Tillett, William ;

FitzGerald, Oliver ;

Gladman, Dafna D. ;

Lindsay, Chris A. ;

McHugh, Neil J. ;

Mease, Philip J. ;

O'Sullivan, Denis ;

Steinkoenig, Ingrid ;

Windisch, Glenn ;

Goel, Niti .

JOURNAL OF RHEUMATOLOGY, 2015, 42 (06) :1021-1026

[10] Patient Participation in Psoriasis and Psoriatic Arthritis Outcome Research: A Report from the GRAPPA 2013 Annual Meeting [J].

de Wit, Maarten ;

Campbell, Willemina ;

FitzGerald, Oliver ;

Gladman, Dafna D. ;

Helliwell, Phillip S. ;

James, Jana ;

Lindsay, Chris ;

MacDonald, Roland ;

McHugh, Neil J. ;

Mease, Philip J. ;

Orbai, Ana-Maria ;

Palominos, Penelope ;

Parkinson, Andrew ;

Tillett, William ;

Goel, Niti .

JOURNAL OF RHEUMATOLOGY, 2014, 41 (06) :1206-1211

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