National strategy for palliative care of severely ill and dying people and their relatives in pandemics (PallPan) in Germany-study protocol of a mixed-methods project

被引：13

作者：

Bausewein, C. ^{[1
]}

Hodiamont, F. ^{[1
]}

Berges, N. ^{[1
]}

Ullrich, A. ^{[2
]}

Gerlach, C. ^{[2
]}

Oechsle, K. ^{[2
]}

Pauli, B. ^{[3
,4
]}

Weber, J. ^{[5
]}

Stiel, S. ^{[5
]}

Schneider, N. ^{[5
]}

Krumm, N. ^{[6
]}

Rolke, R. ^{[6
]}

Gebel, C.

Jansky, M. ^{[8
]}

Nauck, F. ^{[8
]}

Wedding, U. ^{[7
]}

van Oorschot, B. ^{[9
]}

Roch, C. ^{[9
]}

Werner, L. ^{[9
]}

Fischer, M. ^{[9
]}

Schallenburger, M. ^{[10
]}

Reuters, M. C. ^{[10
]}

Schwartz, J. ^{[10
]}

Neukirchen, M. ^{[10
,11
]}

Guelay, A. ^{[12
]}

Maus, K. ^{[12
]}

Jaspers, B. ^{[12
]}

Radbruch, L. ^{[12
]}

Heckel, M. ^{[13
]}

Klinger, I. ^{[13
]}

Ostgathe, C. ^{[13
]}

Kriesen, U. ^{[14
]}

Junghanss, C. ^{[14
]}

Lehmann, E. ^{[1
]}

Gesell, D.

Gauder, S. ^{[1
]}

Boehlke, C. ^{[15
]}

Becker, G. ^{[15
]}

Pralong, A. ^{[3
,4
]}

Strupp, J. ^{[3
,4
]}

Leisse, C. ^{[16
,17
]}

Schloesser, K. ^{[3
,4
]}

Voltz, R. ^{[3
,4
,16
,18
,19
,20
]}

Jung, N. ^{[16
,17
]}

Simon, S. T. ^{[3
,4
]}

机构：

[1] Ludwig Maximilians Univ Munchen, Univ Hosp Munich, Dept Palliat Med, Munich, Germany

[2] Univ Med Ctr Hamburg Eppendorf, Dept Oncol Hematol & Bone Marrow Transplant, Palliat Care Unit, Hamburg, Germany

[3] Univ Cologne, Dept Palliat Med, Fac Med, Cologne, Germany

[4] Univ Hosp, Cologne, Germany

[5] Hannover Med Sch, Inst Gen Practice & Palliat Med, Palliat Care Reserch Grouph Grp, Hannover, Germany

[6] Univ Hosp Aachen, Dept Palliat Med, Aachen, Germany

[7] Jena Univ Hosp, Dept Palliat Med, Jena, Germany

[8] Georg August Univ Goettingen, Univ Med Ctr, Dept Palliat Med, Gottingen, Germany

[9] Univ Wurzburg, Univ Hosp, Interdisciplinary Ctr Palliat Med, Wurzburg, Germany

[10] Heinrich Heine Univ Duesseldorf, Univ Hosp, Interdisciplinary Ctr Palliat Care, Dusseldorf, Germany

[11] Heinrich Heine Univ Duesseldorf, Univ Hosp, Dept Anesthesiol, Dusseldorf, Germany

[12] Univ Hosp Bonn, Dept Palliat Med, Bonn, Germany

[13] Friedrich Alexander Univ Erlangen Nurnberg FAU, Univ Hosp Erlangen, Dept Palliat Med, Ctr Comprehens Canc,CCC Erlangen EMN, Erlangen, Germany

[14] Univ Rostock, Dept Med, Clin Hematol 3, Palliat Med,Oncol,CCC Mecklenburg Vorpommern,Med, Rostock, Germany

[15] Univ Freiburg, Dept Palliat Med, Med Ctr, Fac Med, Freiburg, Germany

[16] Univ Hosp, Fac Med, Cologne, Germany

[17] Univ Cologne, Dept Internal Med, Univ Hosp, Cologne, Germany

[18] Univ Cologne, Ctr Integrated Oncol Aachen Bonn Cologne Dusseldo, Univ Hosp, Cologne, Germany

[19] Univ Cologne, Clin Trials Ctr ZKS, Univ Hosp, Cologne, Germany

[20] Univ Cologne, Univ Hosp, Ctr Hlth Serv Res, Cologne, Germany

来源：

BMC PALLIATIVE CARE | 2022年 / 21卷 / 01期

关键词：

Palliative care; End of life care; SARS-CoV-2; Pandemic; Pandemic preparedness; NEGATIVE AFFECT; COVID-19; VALIDATION;

D O I：

10.1186/s12904-021-00898-w

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

Background In the SARS-CoV-2 pandemic, general and specialist Palliative Care (PC) plays an essential role in health care, contributing to symptom control, psycho-social support, and providing support in complex decision making. Numbers of COVID-19 related deaths have recently increased demanding more palliative care input. Also, the pandemic impacts on palliative care for non-COVID-19 patients. Strategies on the care for seriously ill and dying people in pandemic times are lacking. Therefore, the program 'Palliative care in Pandemics' (PallPan) aims to develop and consent a national pandemic plan for the care of seriously ill and dying adults and their informal carers in pandemics including (a) guidance for generalist and specialist palliative care of patients with and without SARS-CoV-2 infections on the micro, meso and macro level, (b) collection and development of information material for an online platform, and (c) identification of variables and research questions on palliative care in pandemics for the national pandemic cohort network (NAPKON). Methods Mixed-methods project including ten work packages conducting (online) surveys and qualitative interviews to explore and describe i) experiences and burden of patients (with/without SARS-CoV-2 infection) and their relatives, ii) experiences, challenges and potential solutions of health care professionals, stakeholders and decision makers during the SARS-CoV-2 pandemic. The work package results inform the development of a consensus-based guidance. In addition, best practice examples and relevant literature will be collected and variables for data collection identified. Discussion For a future "pandemic preparedness" national and international recommendations and concepts for the care of severely ill and dying people are necessary considering both generalist and specialist palliative care in the home care and inpatient setting.

引用

页数：9

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