Biopsychosocial implications of living with multiple sclerosis: a qualitative study using interpretative phenomenological analysis

被引:11
作者
Kassie, Seada A. [1 ,2 ]
Alia, Jannat [3 ]
Hyland, Lynda [2 ]
机构
[1] Amer Ctr Psychiat & Neurol, Shared Clin Serv, Abu Dhabi, U Arab Emirates
[2] Middlesex Univ Dubai, Psychol, Abu Dhabi, U Arab Emirates
[3] Amer Ctr Psychiat & Neurol, Dept Neurol, Abu Dhabi, U Arab Emirates
关键词
multiple sclerosis; qualitative research; health services administration & management; neurology; psychiatry; OF-LIFE; SELF-EFFICACY; SOCIAL SUPPORT; PHYSICAL-ACTIVITY; FATIGUE; PREVALENCE; PEOPLE; IMPACT; ILLNESS; ANXIETY;
D O I
10.1136/bmjopen-2021-049041
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Background Multiple sclerosis (MS) is estimated to affect 2.8 million people worldwide, with increasing prevalence in all world regions (Walton et al). While there is no cure for MS, medication and lifestyle modifications can slow disease progression and enhance patients' quality of life. The biopsychosocial model of health recognises important interactions among biological, psychological and social factors in illness, including those relating to illness management, which contribute to the experience of those diagnosed with MS. Objective This qualitative, idiographic study aimed to explore the lived experiences of patients in the United Arab Emirates (UAE) diagnosed with S. Methods Semistructured interviews were conducted with a purposive sample of eight patients with MS ranging in age from 25 to 56 years. All participants were residing in the UAE at the time of data collection. Interpretative phenomenological analysis was used to analyse the data. Results Three superordinate themes were identified from patients' candid accounts of their lives with MS, highlighting issues of illness management, acceptance and gratitude, and adaptive coping. These themes broadly illustrate biological, psychological and social aspects of patients' MS experiences. Conclusion The study emphasised the importance of adopting the biopsychosocial model to treat and manage MS. Additionally, it highlights the need for routine assessment and early, multidimensional approach with multidisciplinary team efforts to improve patients' quality of life.
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