The patient perspective: What postural orthostatic tachycardia syndrome patients want physicians to know

被引：24
作者：
Stiles, Lauren E. [1 ]
Cinnamon, Jaclyn [1 ]
Balan, Irina [1 ]
机构：
[1] Dysautonomia Int, East Moriches, NY 11940 USA
来源：
AUTONOMIC NEUROSCIENCE-BASIC & CLINICAL | 2018年 / 215卷
关键词：
DERMATOLOGICAL MANIFESTATIONS; INTOLERANCE; DEFICIENCY; SYMPTOM;
D O I：
10.1016/j.autneu.2018.06.002
中图分类号：
Q189 [神经科学];
学科分类号：
071006 ;
摘要：
Diagnosing and treating postural orthostatic tachycardia syndrome (POTS) can be a frustrating experience for patients and physicians alike. Experienced patient leaders solicited input from the large online POTS community to identify patient suggestions and concerns, with the goal of improving the patient-physician relationship and outcomes in POTS. This review article offers practical tips to improve POTS patient care and links to credible resources for your patients. The authors emphasize the urgent need for improved physician education, a tailored treatment approach, and expanded research efforts.
引用
收藏
页码：121 / 125
页数：5
相关论文
共 35 条
  • [1] Aggarwal A, 2017, J ANESTHESIA PAIN ME, V2, P1
  • [2] Bier anaemic spots, cyanosis with urticaria-like eruption (BASCULE) syndrome: a new entity?
    Bessis, D.
    Jeziorski, E.
    Rigau, V.
    Pralong, P.
    Pallure, V.
    [J]. BRITISH JOURNAL OF DERMATOLOGY, 2016, 175 (01) : 218 - 220
  • [3] Outcomes of Adolescent-Onset Postural Orthostatic Tachycardia Syndrome
    Bhatia, Roma
    Kizilbash, Sarah J.
    Ahrens, Shelley P.
    Killian, Jill M.
    Kimmes, Stephanie A.
    Knoebel, Erin E.
    Muppa, Prasuna
    Weaver, Amy L.
    Fischer, Philip R.
    [J]. JOURNAL OF PEDIATRICS, 2016, 173 : 149 - 153
  • [4] Vitamin B1 deficiency in patients with postural tachycardia syndrome (POTS)
    Blitshteyn, Svetlana
    [J]. NEUROLOGICAL RESEARCH, 2017, 39 (08) : 685 - 688
  • [5] Postural tachycardia syndrome is not caused by deconditioning
    Blitshteyn, Svetlana
    Fries, David
    [J]. PULMONARY CIRCULATION, 2016, 6 (03) : 401 - 401
  • [6] Bowe B, 2018, SPEEDSKATER BRITTANY
  • [7] Multiple sclerosis prevalence in the United States commercially insured population
    Dilokthornsakul, Piyameth
    Valuck, Robert J.
    Nair, Kavita V.
    Corboy, John R.
    Allen, Richard R.
    Campbell, Jonathan D.
    [J]. NEUROLOGY, 2016, 86 (11) : 1014 - 1021
  • [8] Cardiac Origins of the Postural Orthostatic Tachycardia Syndrome
    Fu, Qi
    VanGundy, Tiffany B.
    Galbreath, M. Melyn
    Shibata, Shigeki
    Jain, Manish
    Hastings, Jeffrey L.
    Bhella, Paul S.
    Levine, Benjamin D.
    [J]. JOURNAL OF THE AMERICAN COLLEGE OF CARDIOLOGY, 2010, 55 (25) : 2858 - 2868
  • [9] Dermatological Manifestations of Postural Tachycardia Syndrome Are Common and Diverse
    Huang, Hao
    Deb, Anindita
    Culbertson, Collin
    Morgenshtern, Karen
    Hohler, Anna DePold
    [J]. JOURNAL OF CLINICAL NEUROLOGY, 2016, 12 (01): : 75 - 78
  • [10] The Dermatological Manifestations of Postural Tachycardia Syndrome: A Review with Illustrated Cases
    Huang, Hao
    Hohler, Anna DePold
    [J]. AMERICAN JOURNAL OF CLINICAL DERMATOLOGY, 2015, 16 (05) : 425 - 430
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