Barriers to Care for Children and Youth With Special Health Care Needs: Perceptions of Illinois Pediatricians

被引：29

作者：

Agrawal, Rishi ^{[1
,2
]}

Shah, Parag ^{[1
,2
]}

Zebracki, Kathy ^{[3
,4
]}

Sanabria, Kathy ^{[5
]}

Kohrman, Claire ^{[6
]}

Kohrman, Arthur F. ^{[1
]}

机构：

[1] Northwestern Univ, Feinberg Sch Med, Chicago, IL 60611 USA

[2] LaRabida Childrens Hosp, Chicago, IL USA

[3] Shriners Hosp Children, Chicago, IL USA

[4] Rush Med Coll, Chicago, IL 60612 USA

[5] Amer Acad Pediat, Chicago, IL USA

[6] Westside Hlth Author, Chicago, IL USA

来源：

CLINICAL PEDIATRICS | 2012年 / 51卷 / 01期

关键词：

children and youth with special health care needs; chronic illness; medical home; pediatrics; children; primary care; health services research; technology dependence; SUPPLEMENTAL SECURITY INCOME; MEDICAL HOME; UNMET NEED; FINANCIAL BURDEN; NATIONAL-SURVEY; COORDINATION; FAMILIES; MODEL; SEVERITY; PROFILE;

D O I：

10.1177/0009922811417288

中图分类号：

R72 [儿科学];

学科分类号：

100202 ;

摘要：

Objective. To assess primary care pediatricians' (PCPs') perceptions of caring for children and youth with special health care needs (CYSHCN). Methods. Cross-sectional survey of Illinois pediatricians. Results. Thirty-five percent of surveys were returned and 26% were analyzed. The top 3 perceived barriers were insufficient time (72%), insufficient reimbursement (68%), and lack of support services (59%). Insufficient interest was the least cited barrier (19%). Preparedness to perform tasks related to care of CYSHCN ranged from 89% for accessing early intervention services to 24% for billing and coding. The percentage of PCPs somewhat or very comfortable providing primary care to patients with technology dependence ranged from 75% for blood glucose monitoring to 12% for dialysis. Conclusions. The issues of time, reimbursement, billing, and coding are perceived as significant barriers to the care CYSHCN. There is substantial variation in PCPs' comfort in the care of CYSHCN who require the assistance of medical technologies.

引用

页码：39 / 45

页数：7

共 39 条

[1]

[Anonymous], 2000, DAT SOURC 2000 US PH

[2]

[Anonymous], NAT SURV CHILDR SPEC

[3]

Antonelli RC, 2004, PEDIATRICS, V113, P1522

[4] Care coordination for children and youth with special health care needs: A descriptive, multisite study of activities, personnel costs, and outcomes [J].

Antonelli, Richard C. ;

Stille, Christopher J. ;

Antonelli, Donna M. .

PEDIATRICS, 2008, 122 (01) :E209-E216

[5] Prevalence of children with special health care needs in metropolitan and micropolitan statistical areas in the United States [J].

Bramlett, Matthew D. ;

Blumberg, Stephen J. .

MATERNAL AND CHILD HEALTH JOURNAL, 2008, 12 (04) :488-498

[6] Insurance coverage and financial burden for families of children with special health care needs [J].

Chen, Alex Y. ;

Newacheck, Paul W. .

AMBULATORY PEDIATRICS, 2006, 6 (04) :204-209

[7]

Epstein SG, 1997, ASSESSING QUALITY MA

[8]

EPSTEIN SG, 1998, SHARED RESPONSIBILIT

[9] A tertiary care-primary care partnership model for medically complex and fragile children and youth with special health care needs [J].

Gordon, John B. ;

Colby, Holly H. ;

Bartelt, Tera ;

Jablonski, Debra ;

Krauthoefer, Mary L. ;

Havens, Peter .

ARCHIVES OF PEDIATRICS & ADOLESCENT MEDICINE, 2007, 161 (10) :937-944

[10] Prophylactic phenobarbital administration after resolution of neonatal seizures: Survey of current practice [J].

Guillet, Ronnie ;

Kwon, Jennifer M. .

PEDIATRICS, 2008, 122 (04) :731-735

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