Brief Report: The Experiences of Families of Children with an Autism Spectrum Disorder When Seeking Patient-and Family-Centered Care

被引:9
作者
Kouo, Jennifer L. [1 ]
Kouo, Theodore S. [2 ]
Gallogly, Jillian [1 ]
机构
[1] Johns Hopkins Univ, Inst Innovat Dev Engagement & Learning Syst IDEAL, Sch Educ, 2800 North Charles St, Baltimore, MD 21218 USA
[2] Johns Hopkins Univ, Dept Pediat, Sch Med, Baltimore, MD 21287 USA
关键词
Autism spectrum disorder; Families; Perspectives; Patient- and family-centered care; Healthcare; Acute care settings; EMERGENCY-DEPARTMENT; PSYCHIATRIC-DISORDERS; NATIONAL-SURVEY; HEALTH; ADULTS; PERSPECTIVES; PREVALENCE; KNOWLEDGE; PROVIDERS;
D O I
10.1007/s10803-021-05272-6
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
Patient-and family-centered care (PFCC) is a partnership among healthcare professionals, patients, and families that is grounded in mutual respect and is an approach that impacts delivery of care, decision-making, and information sharing. PFCC should be implemented for all, including individuals with Autism Spectrum Disorders (ASD), who experience adverse medical encounters despite increased prevalence and healthcare utilization. Insights into the experiences of families during medical experiences can inform clinical practice by increasing healthcare professionals' understanding of the population. Using a mixed-methods approach, the perspectives of 40 families were analyzed. The themes include barriers and opportunities to improve upon the delivery of PFCC, which help to advance healthcare interactions and inform solution-based initiatives to facilitate medical visits that may benefit all patients.
引用
收藏
页码:4172 / 4180
页数:9
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