Parents' concerns about issues related to their children's genetic conditions

被引：27

作者：

Gallo, Agatha M. ^{[1
]}

Hadley, Emily K. ^{[1
]}

Angst, Denise B. ^{[2
]}

Knafl, Kathleen A. ^{[3
]}

Smith, Carrol A. M.

机构：

[1] Univ Illinois, Coll Nursing, Dept Maternal Child Nursing, Chicago, IL 60607 USA

[2] Advocate Hlth Care, Advocate Ctr Pediat Res, Oak Brook, IL USA

[3] Oregon Hlth & Sci Univ, Portland, OR 97201 USA

来源：

JOURNAL FOR SPECIALISTS IN PEDIATRIC NURSING | 2008年 / 13卷 / 01期

关键词：

child; genetics; nursing practice; parents' concerns; privacy; qualitative research;

D O I：

10.1111/j.1744-6155.2008.00129.x

中图分类号：

R47 [护理学];

学科分类号：

1011 ;

摘要：

PURPOSE. The purpose of this analysis was to examine parents' (N = 142) concerns about issues (i.e., privacy of information, insurance, healthcare costs, employment, school) related to their children's genetic conditions. DESIGN AND METHODS. Using a series of matrices, thematic analysis was conducted focusing on parents' concerns. RESULTS. Parents were less concerned with privacy and more concerned with insurance, healthcare costs, employment, and school issues. PRACTICE IMPLICATIONS. Nurses and other healthcare professionals need to give parents the opportunity to discuss their concerns and to assist parents with strategies and resources to meet the needs of their children and families.

引用

页码：4 / 14

页数：11

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