On the spectrum, off the beaten path. A qualitative study of Irish parents' experiences of raising a child with autism spectrum conditions

Accessible summary Ten Irish parents raising a child with autism talked about their experiences. They reported that it was difficult but also how it has helped them grow. They hope that their children will be included but are scared about the challenges they will face. Abstract Background Raising a child with autism spectrum conditions (ASC) presents many challenges and learning experiences for parents and other family members. There has been limited research to date on Irish parents' experience of raising a child with ASC. The aim of this study was to describe the experience of a sample of Irish parents who have a child on the autistic spectrum. Method A series of 1:1 semi-structured interviews were conducted with parents in the Republic of Ireland. In total, 10 interviews were conducted. Thematic analysis was undertaken to identify themes. Results Five main themes were identified: (a) blame and stigma; (b) isolation; (c) being vigilant; (d) advocacy; and (e) coping with autism. Conclusions The findings of the study have implications for professionals who work with Irish families affected by autism. Although Ireland's movement towards social inclusion lags behind other countries, a number of the experiences faced by Irish parents are similar to that reported in other countries, suggesting a universality of ASC parenting experiences. The implications of this are discussed.