Adolescents' and Adults' Experiences of Being Surveyed About Violence and Abuse: A Systematic Review of Harms, Benefits, and Regrets

被引:47
作者
Appollis, Tracy McClinton [1 ,2 ]
Lund, Crick [1 ]
de Vries, Petrus J. [1 ]
Mathews, Catherine [1 ,2 ]
机构
[1] Univ Cape Town, Adolescent Hlth Res Unit, Div Child & Adolescent Psychiat, Dept Psychiat & Mental Hlth, ZA-7925 Cape Town, South Africa
[2] South African Med Res Council, Hlth Syst Res Unit, Cape Town, South Africa
基金
欧盟第七框架计划;
关键词
TRAUMA-FOCUSED RESEARCH; RESEARCH PARTICIPANTS; ASKING; DISTRESS; IMPACT; QUESTIONNAIRES; VICTIMIZATION; FEMALES; ETHICS; RISKS;
D O I
10.2105/AJPH.2014.302293
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
The neuroscience and psychological literatures suggest that talking about previous violence and abuse may not only be beneficial, as previously believed, but may also be associated with risks. Thus, studies on such topics introduce ethical questions regarding the risk-benefit ratio of sensitive research. We performed a systematic review of participants' experiences related to sensitive research and compared consequent harms, benefits, and regrets among victims and nonvictims of abuse. Thirty studies were included (4 adolescent and 26 adult studies). In adolescent studies, 3% to 37% of participants (median: 6%) reported harms, but none of these studies measured benefits or regrets. Among adults, 4% to 50% (median: 25%) reported harms, 23% to 100%(median: 92%) reported benefits, and 1% to 6% (median: 2%) reported regrets. Our results suggest that the risk-benefit ratio related to sensitive research is not unfavorable, but there are gaps in the evidence among adolescents.
引用
收藏
页码:E31 / E45
页数:15
相关论文
共 41 条
[1]   Informed consent: are researchers accurately representing risks and benefits? [J].
Ahern, Kathy .
SCANDINAVIAN JOURNAL OF CARING SCIENCES, 2012, 26 (04) :671-678
[2]   Research participants telling the truth about their lives - The ethics of asking and not asking about abuse [J].
Becker-Blease, KA ;
Freyd, JJ .
AMERICAN PSYCHOLOGIST, 2006, 61 (03) :218-226
[3]   A public health perspective on "The ethics of asking and not asking about abuse" [J].
Black, Michele C. ;
Black, Robert S. .
AMERICAN PSYCHOLOGIST, 2007, 62 (04) :328-329
[4]  
Black Michele C, 2006, Violence Vict, V21, P445, DOI 10.1891/vivi.21.4.445
[5]   "What Has It Been Like for You to Talk With Me Today?": The Impact of Participating in Interview Research on Rape Survivors [J].
Campbell, Rebecca ;
Adams, Adrienne E. ;
Wasco, Sharon M. ;
Ahrens, Courtney E. ;
Sefl, Tracy .
VIOLENCE AGAINST WOMEN, 2010, 16 (01) :60-83
[6]  
Carlson E.B., 2003, Journal of Trauma and Dissociation, V4, P131, DOI [DOI 10.1300/J229V04N02_08, 10.1300/J229v04n0208]
[7]  
Carter-Visscher Robin M, 2007, J Trauma Dissociation, V8, P27, DOI 10.1300/J229v08n03_03
[8]   Investigating the Effects of Trauma-Related Research on Well-Being [J].
Cook, Sarah L. ;
Darnell, Doyanne ;
Anthony, Elizabeth R. ;
Tusher, Chantal Poister ;
Zimmerman, Lindsey ;
Enkhtor, Dulamdary ;
Hipp, Tracy N. .
ACCOUNTABILITY IN RESEARCH-ETHICS INTEGRITY AND POLICY, 2011, 18 (05) :297-322
[9]   ETHICAL ISSUES IN RESEARCH ON SENSITIVE TOPICS: PARTICIPANTS' EXPERIENCES OF DISTRESS AND BENEFIT [J].
Decker, Suzanne E. ;
Naugle, Amy E. ;
Carter-Visscher, Robin ;
Bell, Kathryn ;
Seifert, Abby .
JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS, 2011, 6 (03) :55-64
[10]  
DePrince A., 2004, J TRAUMA PRACTICE, V3, P23, DOI [DOI 10.1300/J189V03N04_02, 10.1300/J189v03n04_02]