Online support groups;
Patient empowerment;
Chronic illness;
Internet;
Patient/health professional communication;
Doctor/patient;
COMPUTER-MEDIATED COMMUNICATION;
SOCIAL SUPPORT;
BREAST-CANCER;
SELF-MANAGEMENT;
INTERNET USE;
PATIENT-RELATIONSHIP;
VIRTUAL COMMUNITIES;
EXPERT PATIENTS;
DISEASE;
CARE;
D O I:
10.1016/j.pec.2010.05.029
中图分类号:
R1 [预防医学、卫生学];
学科分类号:
1004 ;
120402 ;
摘要:
Objective: The current research investigates the potential of online support groups (OSGs) to foster empowerment and how membership might affect the patient/health professional relationship. Methods: 246 participants across 33 OSGs completed an online questionnaire. Results: All empowerment processes and outcomes identified by van Uden-Kraan et al. [1] were found to be present. All empowerment outcomes were adequately predicted by empowerment processes. The majority (82.2%) of participants had discussed information found online with their health professional and most (74.2%) were satisfied with the response. Around 60% of participants felt membership of an OSG had affected the relationship with their health professional and from qualitative responses the effects were mostly positive. Conclusion: OSGs have the potential to produce empowerment outcomes for those who choose to use them. Furthermore, users report a positive reaction to information found online from their health professionals. Practice implications: Although not all patients will benefit from using OSGs, health professionals suggesting their use could ensure that they reach the maximum receptive audience. Furthermore, this research could be used to encourage a more 'net friendly' attitude amongst health professionals. (C) 2010 Elsevier Ireland Ltd. All rights reserved.
机构:
Kings Coll London, Florence Nightingale Fac Nursing Midwifery & Pall, James Clerk Maxwell Bldg,57 Waterloo Rd, London SE1 8WA, EnglandKings Coll London, Florence Nightingale Fac Nursing Midwifery & Pall, James Clerk Maxwell Bldg,57 Waterloo Rd, London SE1 8WA, England
Sturt, Jackie
Huxley, Caroline
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Kings Coll London, Florence Nightingale Fac Nursing Midwifery & Pall, James Clerk Maxwell Bldg,57 Waterloo Rd, London SE1 8WA, EnglandKings Coll London, Florence Nightingale Fac Nursing Midwifery & Pall, James Clerk Maxwell Bldg,57 Waterloo Rd, London SE1 8WA, England
Huxley, Caroline
Ajana, Btihaj
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Kings Coll London, Dept Digital Humanities, London, EnglandKings Coll London, Florence Nightingale Fac Nursing Midwifery & Pall, James Clerk Maxwell Bldg,57 Waterloo Rd, London SE1 8WA, England
Ajana, Btihaj
Gainty, Caitjan
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Kings Coll London, Dept Hist, London, EnglandKings Coll London, Florence Nightingale Fac Nursing Midwifery & Pall, James Clerk Maxwell Bldg,57 Waterloo Rd, London SE1 8WA, England
Gainty, Caitjan
Gibbons, Chris
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Accenture Consulting, London, EnglandKings Coll London, Florence Nightingale Fac Nursing Midwifery & Pall, James Clerk Maxwell Bldg,57 Waterloo Rd, London SE1 8WA, England
Gibbons, Chris
Graham, Tanya
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Kings Coll London, Florence Nightingale Fac Nursing Midwifery & Pall, James Clerk Maxwell Bldg,57 Waterloo Rd, London SE1 8WA, EnglandKings Coll London, Florence Nightingale Fac Nursing Midwifery & Pall, James Clerk Maxwell Bldg,57 Waterloo Rd, London SE1 8WA, England
Graham, Tanya
Khadjesari, Zarnie
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机构:
Univ East Anglia, Sch Hlth Sci, Norwich, Norfolk, EnglandKings Coll London, Florence Nightingale Fac Nursing Midwifery & Pall, James Clerk Maxwell Bldg,57 Waterloo Rd, London SE1 8WA, England
Khadjesari, Zarnie
Lucivero, Federica
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Univ Oxford, Nuffield Dept Populat Hlth, Oxford, EnglandKings Coll London, Florence Nightingale Fac Nursing Midwifery & Pall, James Clerk Maxwell Bldg,57 Waterloo Rd, London SE1 8WA, England
Lucivero, Federica
Rogers, Rebecca
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Kings Coll London, Florence Nightingale Fac Nursing Midwifery & Pall, James Clerk Maxwell Bldg,57 Waterloo Rd, London SE1 8WA, EnglandKings Coll London, Florence Nightingale Fac Nursing Midwifery & Pall, James Clerk Maxwell Bldg,57 Waterloo Rd, London SE1 8WA, England
Rogers, Rebecca
Smol, Annie
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Face Front Inclus Theatre, London, EnglandKings Coll London, Florence Nightingale Fac Nursing Midwifery & Pall, James Clerk Maxwell Bldg,57 Waterloo Rd, London SE1 8WA, England
Smol, Annie
Watkins, Jocelyn A.
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Univ Warwick, Warwick Med Sch, Coventry, W Midlands, EnglandKings Coll London, Florence Nightingale Fac Nursing Midwifery & Pall, James Clerk Maxwell Bldg,57 Waterloo Rd, London SE1 8WA, England
Watkins, Jocelyn A.
Griffiths, Frances
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机构:
Univ Witwatersrand, Ctr Hlth Policy, Johannesburg, South AfricaKings Coll London, Florence Nightingale Fac Nursing Midwifery & Pall, James Clerk Maxwell Bldg,57 Waterloo Rd, London SE1 8WA, England