An Integrated Literature Review of the Knowledge Needs of Parents With Children With Special Health Care Needs and of Instruments to Assess These Needs

被引：13
作者：
Adler, Kristin [1 ]
Salantera, Sanna [1 ]
Leino-Kilpi, Helena [1 ]
Graedel, Barbara [2 ]
机构：
[1] Univ Turku, Dept Nursing Sci, Turku 20014, Finland
[2] Inselspital Bern, Univ Childrens Hosp, Paediat & Neonatal Intens Care Unit, Bern, Switzerland
来源：
INFANTS & YOUNG CHILDREN | 2015年 / 28卷 / 01期
关键词：
children with special health care needs; family-centered care; knowledge/information needs; needs assessment; INFORMATION NEEDS; DOWN-SYNDROME; CEREBRAL-PALSY; YOUNG-CHILDREN; CLEFT-LIP; RHEUMATIC-DISEASE; FAMILY SCALE; DISABILITIES; IMPACT; EXPERIENCES;
D O I：
10.1097/IYC.0000000000000028
中图分类号：
G76 [特殊教育];
学科分类号：
040109 ;
摘要：
The purpose of this integrative (including both quantitative and qualitative studies) literature review was to identify knowledge needs of parents of a child with special health care needs and to evaluate instruments to assess these needs. The content analysis of 48 publications revealed a vast amount of knowledge needs that were categorized into 9 categories: (a) knowledge about the condition or illness, (b) support, (c) treatment, (d) everyday care of the child, (f) the future, (g) how to explain the illness to others, (h) equipment, (i) organizational issues, and (j) the effect of the illness on the family. Several instruments to assess these needs are described. There is evidence that parents have various knowledge needs at different times of their children's life and it is important that these needs are assessed systematically. Professionals have many possibilities to provide information and education as it is needed by these parents.
引用
收藏
页码：46 / 71
页数：26
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