Report Role of Respite Palliative Care in Understanding and Managing Complex Palliative Care Situation - A Case Report

被引:2
作者
Shinde, Tanvi [1 ]
Damani, Anuja [2 ]
Ghoshal, Arunangshu [3 ]
Muckaden, Mary Ann [1 ]
Deodhar, Jayita [1 ,4 ,5 ]
机构
[1] Tata Mem Hosp, Dept Palliat Med, Mumbai, Maharashtra, India
[2] Manipal Acad Higher Educ, Kasturba Med Coll, Dept Palliat Med & Support Care, Manipal, India
[3] Univ Hlth Network, Div Palliat Care, Toronto, ON, Canada
[4] Tata Mem Hosp, Dept Psychooncol, Mumbai, Maharashtra, India
[5] Tata Mem Hosp, Dept Psychosocial Care, Mumbai, Maharashtra, India
关键词
Cancer; Palliative care; Respite care; Complex symptoms;
D O I
10.25259/IJPC_14_2021
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Introduction: The concept of total pain encompasses a person's physical, psychological, social, spiritual, and practical struggles. Effective pain and symptom management are the core elements of palliative care which aims at reducing suffering and improving quality of life (QOL) throughout the course of illness and need to be addressed with multidisciplinary coordinated approach in a timely manner. It may be challenging for palliative care providers to address all these distressing issues during short out-patient consultations. Hence, Respite Palliative Care Unit (RPCU) is an appropriate place to provide holistic patient care. Case Description: A 59-year-old widow, from Muslim community, was following up with Palliative Medicine out-patient department for management of progressively increasing chest pain with frequent exacerbations. She remained unsatisfied with the pain management and reported moderate to severe intensity of pain despite maximal pain management using multimodal approaches. We planned to systematically explore and address the issues leading to uncontrolled pain and distress. The patient was admitted to RPCU for holistic pain management and continuity of care. We explored and addressed the complex psycho-socio-spiritual aspects contributing to the total pain experience to achieve better symptom control and improve her overall well-being. Conclusion: This case report emphasizes the role of RPCU in effective and holistic management of psychosocial, spiritual issues, difficult communication, and advanced care planning. This model of palliative care can be a valuable addition to various health-care set-ups in the developing countries for improvement of patient care.
引用
收藏
页码:120 / 123
页数:4
相关论文
共 10 条
  • [1] Challenges on the provision of palliative care for patients with cancer in low- and middle-income countries: a systematic review of reviews
    Abu-Odah, Hammoda
    Molassiotis, Alex
    Liu, Justina
    [J]. BMC PALLIATIVE CARE, 2020, 19 (01)
  • [2] Cruz-Oliver Dulce M, 2017, Mo Med, V114, P110
  • [3] National Consensus Project Clinical Practice Guidelines for Quality Palliative Care Guidelines, 4th Edition
    Ferrell, Betty R.
    Twaddle, Martha L.
    Melnick, Amy
    Meier, Diane E.
    [J]. JOURNAL OF PALLIATIVE MEDICINE, 2018, 21 (12) : 1684 - 1689
  • [4] Hardwick C, 1995, Eur J Cancer Care (Engl), V4, P118, DOI 10.1111/j.1365-2354.1995.tb00068.x
  • [5] Referral criteria for outpatient specialty palliative cancer care: an international consensus
    Hui, David
    Mori, Masanori
    Watanabe, Sharon M.
    Caraceni, Augusto
    Strasser, Florian
    Saarto, Tiina
    Cherny, Nathan
    Glare, Paul
    Kaasa, Stein
    Bruera, Eduardo
    [J]. LANCET ONCOLOGY, 2016, 17 (12) : E552 - E559
  • [6] Respite in palliative care: a review and discussion of the literature
    Ingleton, C
    Payne, S
    Nolan, M
    Carey, I
    [J]. PALLIATIVE MEDICINE, 2003, 17 (07) : 567 - 575
  • [7] Laizner A M, 1993, Semin Oncol Nurs, V9, P114, DOI 10.1016/S0749-2081(05)80107-X
  • [8] The Concept of Respite in Palliative Care: Definitions and Discussions
    Rao, Seema Rajesh
    Gupta, Mayank
    Salins, Naveen
    [J]. CURRENT ONCOLOGY REPORTS, 2021, 23 (02)
  • [9] Salins N, 2015, RESPITE MODEL PALLIA
  • [10] Thielemann P, 2000, Am J Hosp Palliat Care, V17, P253, DOI 10.1177/104990910001700411