Patient Perspective: Choosing or Developing Instruments

被引：23
作者：
Kirwan, John R. [1 ]
Fries, James F. [2 ]
Hewlett, Sarah [3 ]
Osborne, Richard H. [4 ]
机构：
[1] Univ Bristol, Acad Rheumatol Unit, Bristol Royal Infirm, Bristol, Avon, England
[2] Stanford Univ, Sch Med, Palo Alto, CA 94304 USA
[3] Univ W England, Acad Rheumatol Unit, Bristol Royal Infirm, Bristol BS16 1QY, Avon, England
[4] Deakin Univ, Melbourne, Vic, Australia
来源：
JOURNAL OF RHEUMATOLOGY | 2011年 / 38卷 / 08期
关键词：
PATIENT REPORTED OUTCOMES; OUTCOME ASSESSMENT; OMERACT; INFORMATION-SYSTEM PROMIS; LIFE IMPACT MEASURES; RHEUMATOID-ARTHRITIS; PHYSICAL FUNCTION; REPORTED OUTCOMES; OMERACT; 9; FATIGUE; PROGRESS; ITEM; SCALES;
D O I：
10.3899/jrheum.110390
中图分类号：
R5 [内科学];
学科分类号：
1002 ; 100201 ;
摘要：
Previous Outcome Measures in Rheumatology (OMERACT) meetings recognized that patients view outcomes of intervention from a different perspective. This preconference position paper briefly sets out 2 patient-reported outcome (PRO) instrument approaches, the PROMISE computer adaptive testing (CAT) system and development of a rheumatoid arthritis-specific questionnaire to measure fatigue; a tentative proposal for a PRO instrument development pathway is also made. (J Rheumatol 2011; 38:1716-19; doi:10.3899/jrheum.110390)
引用
收藏
页码：1716 / 1719
页数：4
相关论文
共 28 条
  • [1] From the item to the outcome: the promising prospects of PROMIS
    Aletaha, Daniel
    [J]. ARTHRITIS RESEARCH & THERAPY, 2010, 12 (01)
  • [2] [Anonymous], Patient-reported outcome and quality of life instruments database
  • [3] [Anonymous], GUID IND PAT REP OUT
  • [4] Boers M, 1998, J RHEUMATOL, V25, P198
  • [5] Better assessment of physical function: item improvement is neglected but essential
    Bruce, Bonnie
    Fries, James F.
    Ambrosini, Debbie
    Lingala, Bharathi
    Gandek, Barbara
    Rose, Matthias
    Ware, John E., Jr.
    [J]. ARTHRITIS RESEARCH & THERAPY, 2009, 11 (06)
  • [6] The Patient-Reported Outcomes Measurement Information System (PROMIS) Progress of an NIH roadmap cooperative group during its first two years
    Cella, David
    Yount, Susan
    Rothrock, Nan
    Gershon, Richard
    Cook, Karon
    Reeve, Bryce
    Ader, Deborah
    Fries, James F.
    Bruce, Bonnie
    Rose, Mattias
    [J]. MEDICAL CARE, 2007, 45 (05) : S3 - S11
  • [7] More relevant, precise, and efficient items for assessment of physical function and disability: moving beyond the classic instruments
    Fries, J. F.
    Bruce, B.
    Bjorner, J.
    Rose, M.
    [J]. ANNALS OF THE RHEUMATIC DISEASES, 2006, 65 : 16 - 21
  • [8] Progress in Assessing Physical Function in Arthritis: PROMIS Short Forms and Computerized Adaptive Testing
    Fries, James F.
    Cella, David
    Rose, Matthias
    Krishnan, Eswar
    Bruce, Bonnie
    [J]. JOURNAL OF RHEUMATOLOGY, 2009, 36 (09) : 2061 - 2066
  • [9] Fries JF., 2006, FUTURE RHEUMATOL, V1, P415, DOI [10.2217/17460816.1.4.415, DOI 10.2217/17460816.1.4.415]
  • [10] Fries JF, 2009, ARTHRITIS RHEUM S, V60, pS229
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