Parenting children with hypoplastic left heart syndrome: Finding a balance

被引：30
作者：
Lee, Anra [3 ]
Rempel, Gwen R. [1 ,2 ]
机构：
[1] Univ Alberta, Fac Nursing, Edmonton, AB, Canada
[2] Alberta Heritage Fdn Med Res, Edmonton, AB, Canada
[3] Alberta Childrens Prov Gen Hosp, Calgary, AB T2T 5C7, Canada
来源：
JOURNAL FOR SPECIALISTS IN PEDIATRIC NURSING | 2011年 / 16卷 / 03期
基金：
加拿大健康研究院;
关键词：
Congenital heart disease; hypoplastic left heart syndrome; normalization; parenting; qualitative research; secondary analysis; NEURODEVELOPMENTAL OUTCOMES; FAMILIES; NORMALIZATION; SURVIVAL; PERSPECTIVE; PALLIATION; DISABILITY; MANAGEMENT; LIFE;
D O I：
10.1111/j.1744-6155.2011.00289.x
中图分类号：
R47 [护理学];
学科分类号：
1011 ;
摘要：
Purpose. This study described the role normalization played for parents related to their young children with hypoplastic left heart syndrome. Design and Methods. The data source for this secondary analysis was 30 interviews with 16 parents. Results. Three themes were identified: normalization, parental perception of child vulnerability, and optimistic appraisal. Parents engaged in a balancing act between worrying about their children's vulnerability and marveling at their children's survival, using normalization as a coping strategy. Practice Implications. Nurses can collaborate with parents to determine strategies to restore a sense of normalcy to simultaneously promote child independence and parent well-being.
引用
收藏
页码：179 / 189
页数：11
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