Is it ever morally permissible to select for deafness in one's child?

被引:19
作者
Wallis, Jacqueline Mae [1 ]
机构
[1] Univ Bristol, Dept Philosophy, Bristol BS6 6JL, Avon, England
关键词
Deafness; Deaf; PGD; Disability; Elizabeth Barnes; Value-neutral model; PREIMPLANTATION GENETIC DIAGNOSIS; DISABILITY; ATTITUDES; THINKING; ETHICS; ADULTS; HARM;
D O I
10.1007/s11019-019-09922-6
中图分类号
B82 [伦理学(道德学)];
学科分类号
摘要
As reproductive genetic technologies advance, families have more options to choose what sort of child they want to have. Using preimplantation genetic diagnosis (PGD), for example, allows parents to evaluate several existing embryos before selecting which to implant via in vitro fertilization (IVF). One of the traits PGD can identify is genetic deafness, and hearing embryos are now preferentially selected around the globe using this method. Importantly, some Deaf families desire a deaf child, and PGD-IVF is also an option for them. Selection for genetic deafness, however, encounters widespread disapproval in the hearing community, including mainstream philosophy and bioethics. In this paper I apply Elizabeth Barnes' value-neutral model of disability as mere-difference to the case of selecting for deafness. I draw on evidence from Deaf Studies and Disability Studies to build an understanding of deafness, the Deaf community, and the circumstances relevant to reproductive choices that may obtain for some Deaf families. Selection for deafness, with deafness understood as mere-difference and valued for its cultural identity, need not necessitate impermissible moral harms. I thus advocate that it is sometimes morally permissible to select for deafness in one's child.
引用
收藏
页码:3 / 15
页数:13
相关论文
共 58 条
[1]   The disability paradox: high quality of life against all odds [J].
Albrecht, GL ;
Devlieger, PJ .
SOCIAL SCIENCE & MEDICINE, 1999, 48 (08) :977-988
[2]  
Allen Buchanan, 2000, CHANCE CHOICE GENETI
[3]  
[Anonymous], 2014, Deaf gain: Raising the stakes for human diversity
[4]  
Atkinson Rebecca, 2008, OUCH ITS DISABILITY
[5]  
Bagenstos SR, 2007, VANDERBILT LAW REV, V60, P745
[6]  
Barbara Kannapell, 1980, SIGN LANGUAGE DEAF C
[7]   Valuing Disability, Causing Disability [J].
Barnes, Elizabeth .
ETHICS, 2014, 125 (01) :88-113
[8]   Disability, Minority, and Difference [J].
Barnes, Elizabeth .
JOURNAL OF APPLIED PHILOSOPHY, 2009, 26 (04) :337-355
[9]  
Barry S, 2004, PARADOX CHOICE WHY M
[10]  
Barry Schwartz, 2004, POSITIVE PSYCHOL PRA, P86