The care of patients with Duchenne, Becker, and other muscular dystrophies in the COVID-19 pandemic

被引：41

作者：

Veerapandiyan, Aravindhan ^{[1
]}

Wagner, Kathryn R. ^{[2
,3
,4
,5
]}

Apkon, Susan ^{[6
]}

McDonald, Craig M. ^{[7
,8
]}

Mathews, Katherine D. ^{[9
]}

Parsons, Julie A. ^{[10
]}

Wong, Brenda L. ^{[11
]}

Eichinger, Katy ^{[12
]}

Shieh, Perry B. ^{[13
]}

Butterfield, Russell J. ^{[14
]}

Rao, Vamshi K. ^{[15
]}

Smith, Edward C. ^{[16
]}

Proud, Crystal M. ^{[17
]}

Connolly, Anne M. ^{[18
]}

Ciafaloni, Emma ^{[12
]}

机构：

[1] Univ Arkansas Med Sci, Arkansas Childrens Hosp, Dept Pediat, Div Neurol, Little Rock, AR 72205 USA

[2] Johns Hopkins Sch Med, Ctr Genet Muscle Disorders, Baltimore, MD USA

[3] Johns Hopkins Sch Med, Kennedy Krieger Inst, Baltimore, MD USA

[4] Johns Hopkins Sch Med, Dept Neurol, Baltimore, MD USA

[5] Johns Hopkins Sch Med, Dept Neurosci, Baltimore, MD USA

[6] Univ Colorado, Sch Med, Dept Phys Med & Rehabil, Aurora, CO USA

[7] Univ Calif Davis Hlth Syst, Dept Phys Med & Rehabil, Sacramento, CA USA

[8] Univ Calif Davis Hlth Syst, Dept Pediat, Sacramento, CA USA

[9] Univ Iowa, Dept Pediat, Carver Coll Med, Iowa City, IA 52242 USA

[10] Univ Colorado, Sch Med, Dept Neurol & Pediat, Aurora, CO USA

[11] Univ Massachusetts, Med Sch, Dept Pediat & Neurol, Worcester, MA USA

[12] Univ Rochester, Med Ctr, Dept Neurol, 601 Elmwood Ave,POB 673, Rochester, NY 14642 USA

[13] Univ Calif Los Angeles, Dept Neurol, Los Angeles, CA 90024 USA

[14] Univ Utah, Sch Med, Dept Pediat & Neurol, Salt Lake City, UT USA

[15] Northwestern Univ, Dept Pediat, Ann & Robert H Lurie Childrens Hosp Chicago, Div Neurol,Feinberg Sch Med, Chicago, IL 60611 USA

[16] Duke Univ, Med Ctr, Dept Pediat, Div Neurol, Durham, NC 27710 USA

[17] Childrens Hosp Kings Daughters, Dept Pediat, Div Neurol, Norfolk, VA USA

[18] Ohio State Univ, Coll Med, Dept Pediat, Div Neurol,Nationwide Childrens Hosp, Columbus, OH 43210 USA

来源：

MUSCLE & NERVE | 2020年 / 62卷 / 01期

基金：

美国国家卫生研究院;

关键词：

BMD; consensus; COVID-19; DMD; muscular dystrophy; recommendations; MANAGEMENT; DIAGNOSIS;

D O I：

10.1002/mus.26902

中图分类号：

R74 [神经病学与精神病学];

学科分类号：

摘要：

The coronavirus disease 2019 (COVID-19) pandemic has resulted in the reorganization of health-care settings affecting clinical care delivery to patients with Duchenne and Becker muscular dystrophy (DBMD) as well as other inherited muscular dystrophies. The magnitude of the impact of this public health emergency on the care of patients with DBMD is unclear as they are suspected of having an increased risk for severe manifestations of COVID-19. In this article, the authors discuss their consensus recommendations pertaining to care of these patients during the pandemic. We address issues surrounding corticosteroid and exon-skipping treatments, cardiac medications, hydroxychloroquine use, emergency/respiratory care, rehabilitation management, and the conduct of clinical trials. We highlight the importance of collaborative treatment decisions between the patient, family, and health-care provider, considering any geographic or institution-specific policies and precautions for COVID-19. We advocate for continuing multidisciplinary care for these patients using telehealth.

引用

页码：41 / 45

页数：5

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