The fight for 'health-related normality': A qualitative study of the experiences of individuals living with established inflammatory bowel disease (IBD)

被引:95
|
作者
Hall, NJ
Rubin, GP
Dougall, A
Hungin, APS
Neely, J
机构
[1] Univ Sunderland, Ctr Primary & Community Care, Sch Hlth Nat & Social Sci, Sunderland SR2 7BW, England
[2] Univ Durham, Dept Anthropol, Durham DH1 3HP, England
[3] Univ Durham, Ctr Integrated Hlth Care Res, Durham DH1 3HP, England
[4] Univ Durham, Dept Psychol, Durham DH1 3HP, England
关键词
chronic illness; coping; grounded theory; Inflammatory Bowel Disease; normality;
D O I
10.1177/1359105305051433
中图分类号
B849 [应用心理学];
学科分类号
040203 ;
摘要
This article reports on the experiences of individuals living with IBD and identifies a range of coping strategies used by them. Qualitative data from 15 individual interviews and three focus groups were analysed using a grounded theory approach. The main focus is on the emergent core concept of 'health-related normality'. A theoretical framework is proposed to explain how individuals with IBD assess their health-related normality, their fight to maintain it and their need to retain the appearance of normality to others. It is concluded that individuals maintain their health-related normality along certain time and context sensitive continuums rather than fitting into a distinct typology.
引用
收藏
页码:443 / 455
页数:13
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