The fight for 'health-related normality': A qualitative study of the experiences of individuals living with established inflammatory bowel disease (IBD)

被引：95
|
作者：
Hall, NJ
Rubin, GP
Dougall, A
Hungin, APS
Neely, J
机构：
[1] Univ Sunderland, Ctr Primary & Community Care, Sch Hlth Nat & Social Sci, Sunderland SR2 7BW, England
[2] Univ Durham, Dept Anthropol, Durham DH1 3HP, England
[3] Univ Durham, Ctr Integrated Hlth Care Res, Durham DH1 3HP, England
[4] Univ Durham, Dept Psychol, Durham DH1 3HP, England
来源：
JOURNAL OF HEALTH PSYCHOLOGY | 2005年 / 10卷 / 03期
关键词：
chronic illness; coping; grounded theory; Inflammatory Bowel Disease; normality;
D O I：
10.1177/1359105305051433
中图分类号：
B849 [应用心理学];
学科分类号：
040203 ;
摘要：
This article reports on the experiences of individuals living with IBD and identifies a range of coping strategies used by them. Qualitative data from 15 individual interviews and three focus groups were analysed using a grounded theory approach. The main focus is on the emergent core concept of 'health-related normality'. A theoretical framework is proposed to explain how individuals with IBD assess their health-related normality, their fight to maintain it and their need to retain the appearance of normality to others. It is concluded that individuals maintain their health-related normality along certain time and context sensitive continuums rather than fitting into a distinct typology.
引用
收藏
页码：443 / 455
页数：13
相关论文
共 50 条
  • [21] Impact of pregnancy on health-related quality of life of patients with inflammatory bowel disease
    Ananthakrishnan, Ashwin N.
    Zadvornova, Yelena
    Naik, Amar S.
    Issa, Mazen
    Perera, Lilani P.
    JOURNAL OF DIGESTIVE DISEASES, 2012, 13 (09) : 472 - 477
  • [22] Impact of pain on health-related quality of life in patients with inflammatory bowel disease
    Anja Schirbel
    Anne Reichert
    Stephanie Roll
    Daniel C Baumgart
    Carsten Büning
    Bianca Wittig
    Bertram Wiedenmann
    Axel Dignass
    Andreas Sturm
    World Journal of Gastroenterology, 2010, 16 (25) : 3168 - 3177
  • [23] The impact of biologics on health-related quality of life in patients with inflammatory bowel disease
    Vogelaar, Lauran
    van't Spijker, Adriaan
    van der Woude, C. Janneke
    CLINICAL AND EXPERIMENTAL GASTROENTEROLOGY, 2009, 2 : 101 - 109
  • [24] Psychosocial Functioning and Health-related Quality of Life in Paediatric Inflammatory Bowel Disease
    Ross, Sarah C.
    Strachan, Julie
    Russell, Richard K.
    Wilson, Sarah L.
    JOURNAL OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION, 2011, 53 (05) : 480 - 488
  • [25] Providing disease-related information worsens health-related quality of life in inflammatory bowel disease
    Borgaonkar, MR
    Townson, G
    Donnelly, M
    Irvine, EJ
    INFLAMMATORY BOWEL DISEASES, 2002, 8 (04) : 264 - 269
  • [26] Instruments to measure health-related quality of life in children and adolescents with inflammatory bowel disease - systematic review and qualitative analysis
    Racker, Eva
    Kreimeier, Simone
    Greiner, Wolfgang
    GESUNDHEITSOEKONOMIE UND QUALITAETSMANAGEMENT, 2018, 23 (04): : 212 - 229
  • [27] A Feeling of Otherness: A Qualitative Research Synthesis Exploring the Lived Experiences of Stigma in Individuals with Inflammatory Bowel Disease
    Muse, Kate
    Johnson, Emma
    David, Annabel L.
    INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, 2021, 18 (15)
  • [28] Health-related quality of life and psychosocial functioning of adolescents with inflammatory bowel disease
    De Boer, M
    Grootenhuis, M
    Derkx, B
    Last, B
    INFLAMMATORY BOWEL DISEASES, 2005, 11 (04) : 400 - 406
  • [29] Fatigue and Health-related Quality of Life in Inflammatory Bowel Disease: Results from a Population-Based Study in the Netherlands: The IBD-South Limburg Cohort
    Romberg-Camps, M. J. L.
    Bol, Y.
    Dagnelie, P. C.
    Hesselink-van de Kruijs, M. A. M.
    Kester, A. D. M.
    Engels, L. G. J. B.
    van Deursen, C.
    Hameeteman, W. H. A.
    Pierik, M.
    Wolters, F.
    Russel, M. G. V. M.
    Stockbruegger, R. W.
    INFLAMMATORY BOWEL DISEASES, 2010, 16 (12) : 2137 - 2147
  • [30] Influence of alexithymia on health-related quality of life in inflammatory bowel disease: Are there any related factors?
    Iglesias-Rey, Marta
    Barreiro-de Acosta, Manuel
    Caamano-Isorna, Francisco
    Vazquez Rodriguez, Isabel
    Lorenzo Gonzalez, Aurelio
    Bello-Paderne, Xabier
    Enrique Dominguez-Munoz, J.
    SCANDINAVIAN JOURNAL OF GASTROENTEROLOGY, 2012, 47 (04) : 445 - 453
12345