Religious Perspectives on Precision Medicine in Singapore

被引：4

作者：

Toh, Hui Jin ^{[1
]}

Ballantyne, Angela ^{[1
,2
]}

Ong, Serene Ai Kiang ^{[1
]}

Sankaran, Chitra ^{[3
]}

Tay, Hung Yong ^{[4
]}

Singh, Malminderjit ^{[5
]}

Zaidi, Raza ^{[6
]}

Chia, Roland ^{[7
]}

Singh, Sarabjeet ^{[8
]}

Samachittananda, Swami ^{[9
]}

Shi, You Guang ^{[10
]}

Tan, Zhixia ^{[4
]}

Lysaght, Tamra ^{[1
]}

机构：

[1] Natl Univ Singapore, Yong Loo Lin Sch Med, Ctr Biomed Eth, Singapore, Singapore

[2] Univ Otago, Dept Primary Hlth Care & Gen Practice, Wellington, New Zealand

[3] Hindu Ctr, Singapore, Singapore

[4] Taoist Mission Singapore, Singapore, Singapore

[5] Sikh Advisory Board, Singapore, Singapore

[6] Jaafari Muslim Assoc Singapore, Singapore, Singapore

[7] Natl Council Churches Singapore, Singapore, Singapore

[8] Young Sikh Assoc Singapore, Singapore, Singapore

[9] Ramakrishna Mission, Singapore, Singapore

[10] Singapore Buddhist Federat, Singapore, Singapore

来源：

ASIAN BIOETHICS REVIEW | 2021年 / 13卷 / 04期

关键词：

Precision medicine; Religious views; Health data sharing; Genomics; Private sector; Health equity; ETHICS FRAMEWORK; HEALTH-CARE; BIG DATA; PARTNERSHIPS; ATTITUDES; CANCER;

D O I：

10.1007/s41649-021-00180-4

中图分类号：

B82 [伦理学（道德学）];

学科分类号：

摘要：

Precision medicine (PM) aims to revolutionise healthcare, but little is known about the role religion and spirituality might play in the ethical discourse about PM. This Perspective reports the outcomes of a knowledge exchange fora with religious authorities in Singapore about data sharing for PM. While the exchange did not identify any foundational religious objections to PM, ethical concerns were raised about the possibility for private industry to profiteer from social resources and the potential for genetic discrimination by private health insurers. According to religious authorities in Singapore, sharing PM data with private industry will require a clear public benefit and robust data governance that incorporates principles of transparency, accountability and oversight.

引用

页码：473 / 483

页数：11

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