A dementia-friendly church: How can the African American church support families affected by dementia?

被引:18
作者
Epps, Fayron [1 ]
Heidbreder, Virginia [2 ]
Alexander, Karah [2 ]
Tomlinson, Audrey [2 ]
Freeman, Valencia [3 ]
Williams, Nancy [4 ]
机构
[1] Emory Univ, Nell Hodgson Woodruff Sch Nursing, 1520 Clifton Rd, Atlanta, GA 30322 USA
[2] Georgia State Univ, Atlanta, GA 30303 USA
[3] Georgia State Univ, Perimeter Coll, Byrdine F Lewis Coll Nursing & Hlth Profess, Clarkston, GA USA
[4] Georgia State Univ, Perimeter Coll, Byrdine F Lewis Coll Nursing, Clarkston, GA USA
来源
DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE | 2021年 / 20卷 / 02期
关键词
religion; Alzheimer's disease; caregiver support; Black Church; clergy; HEALTH; CARE;
D O I
10.1177/1471301219900416
中图分类号
R4 [临床医学]; R592 [老年病学];
学科分类号
1002 ; 100203 ; 100602 ;
摘要
Dementia, including Alzheimer's disease, is affecting the African American community at alarming rates, as African Americans have a greater risk of dementia than other races. The African American church has traditionally been a safe haven where families go for support and healing. However, many churches are not equipped to support families living with dementia. The purpose of this study was to explore ways African American churches can be dementia-friendly to support families affected by dementia. A qualitative descriptive design was used to collect data from 12 African American community stakeholders. Participants were inclusive of caregivers, church leaders, community members, and service providers. During the semi-structured interviews, participants were asked to share characteristics of a dementia-friendly church. Thematic analysis was performed using data from interviews, researcher's journal, and field notes. Responses described a dementia-friendly church as (a) resourceful; (b) welcoming and friendly; (c) inclusive and comfortable; (d) understanding and accepting; and (e) concerned about personal well-being. This study has wide implications not only for African American churches and families, but also for families living with dementia outside of African American faith communities. These findings allow for faith leaders and churches to begin the process of becoming dementia-friendly, thus enabling congregations, communities, and persons with dementia to continue living in meaningful ways. In conclusion, churches are a source of religious support and provide access to resources for families in difficult times. Thus, it is imperative for African American churches to explore ways to best support and meet the needs of families living with dementia.
引用
收藏
页码:556 / 569
页数:14
相关论文
共 42 条
  • [21] The spirituality of people with late-stage dementia: a review of the research literature, a critical analysis and some implications for person-centred spirituality and dementia care
    Kevern, Peter
    [J]. MENTAL HEALTH RELIGION & CULTURE, 2015, 18 (09) : 765 - 776
  • [22] Lincoln Y.S., 1986, NEW DIR PROGRAM EVAL, V1986, P73, DOI [10.1002/ev.1427, DOI 10.1002/EV.1427]
  • [23] Living in aged care: Using spiritual reminiscence to enhance meaning in life for those with dementia
    MacKinlay, Elizabeth
    Trevitt, Corinne
    [J]. INTERNATIONAL JOURNAL OF MENTAL HEALTH NURSING, 2010, 19 (06) : 394 - 401
  • [24] Martin E. P., 2002, SPIRITUALITY BACK HE
  • [25] Racial and ethnic estimates of Alzheimer's disease and related dementias in the United States (2015-2060) in adults aged ≥65 years
    Matthews, Kevin A.
    Xu, Wei
    Gaglioti, Anne H.
    Holt, James B.
    Croft, Janet B.
    Mack, Dominic
    McGuire, Lisa C.
    [J]. ALZHEIMERS & DEMENTIA, 2019, 15 (01) : 17 - 24
  • [26] Mooris J.R., 1996, COUNSELING VALUES, V41, P59, DOI [DOI 10.1002/J.2161-007X.1996.TB00863.X, 10.1002/j.2161007X.1996.tb00863.x, DOI 10.1002/J.2161007X.1996.TB00863.X]
  • [27] Qualitative description - the poor cousin of health research?
    Neergaard, Mette Asbjoern
    Olesen, Frede
    Andersen, Rikke Sand
    Sondergaard, Jens
    [J]. BMC MEDICAL RESEARCH METHODOLOGY, 2009, 9
  • [28] Pew Research Center, 2009, REL PORTR AFR AM FOR
  • [29] Supporting Healthy Dementia Culture: An Exploratory Study of the Church
    Plunkett, Robyn
    Chen, Peter
    [J]. JOURNAL OF RELIGION & HEALTH, 2016, 55 (06) : 1917 - 1928
  • [30] Anxiety and Stigma in Dementia A Threat to Aging in Place
    Riley, Rebecca J.
    Burgener, Sandy
    Buckwalter, Kathleen C.
    [J]. NURSING CLINICS OF NORTH AMERICA, 2014, 49 (02) : 213 - +