Environmental Barriers and Supports to Everyday Participation: A Qualitative Insider Perspective From People With Disabilities

被引:223
作者
Hammel, Joy [1 ,2 ]
Magasi, Susan [1 ]
Heinemann, Allen [3 ,4 ]
Gray, David B. [5 ]
Stark, Susan [6 ]
Kisala, Pamela [7 ]
Carlozzi, Noelle E. [8 ]
Tulsky, David [7 ,9 ]
Garcia, Sofia F. [10 ,11 ]
Hahn, Elizabeth A. [10 ,12 ]
机构
[1] Univ Illinois, Dept Occupat Therapy, Chicago, IL 60612 USA
[2] Univ Illinois, Dept Disabil & Human, Chicago, IL 60612 USA
[3] Rehabil Inst Chicago, Ctr Rehabil Outcomes Res, Chicago, IL 60611 USA
[4] Northwestern Univ, Feinberg Sch Med, Dept Phys Med & Rehabil, Chicago, IL 60611 USA
[5] Washington Univ, Program Occupat Therapy, St Louis, MO USA
[6] Washington Univ, Occupat Therapy Neurol & Social Work, St Louis, MO USA
[7] Univ Delaware, Coll Hlth Sci, Dept Phys Therapy, Newark, DE USA
[8] Univ Michigan, Dept Phys Med & Rehabil, Ctr Clin Outcomes & Assessment Res, Ann Arbor, MI USA
[9] Kessler Fdn Res Ctr, W Orange, NJ USA
[10] Northwestern Univ, Feinberg Sch Med, Dept Med Social Sci, Chicago, IL 60611 USA
[11] Northwestern Univ, Feinberg Sch Med, Dept Psychiat & Behav Sci, Chicago, IL 60611 USA
[12] Northwestern Univ, Feinberg Sch Med, Ctr Patient Ctr Outcomes, Chicago, IL 60611 USA
来源
ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION | 2015年 / 96卷 / 04期
基金
美国国家卫生研究院;
关键词
Environment; Focus groups; Qualitative research; Rehabilitation; Social determinants of health; Social participation; TRAUMATIC BRAIN-INJURY; FOCUS GROUPS; OF-LIFE; INDIVIDUALS; RELEVANT; ISSUES; HEALTH;
D O I
10.1016/j.apmr.2014.12.008
中图分类号
R49 [康复医学];
学科分类号
100215 ;
摘要
Objective: To describe environmental factors that influence participation of people with disabilities. Design: Constant comparative, qualitative analyses of transcripts from 36 focus groups across 5 research projects. Setting: Home, community, work, and social participation settings. Participants: Community-dwelling people (N=201) with diverse disabilities (primarily spinal cord injury, traumatic brain injury, and stroke) from 8 states. Interventions: None. Main Outcome Measures: Environmental barriers and supports to participation. Results: We developed a conceptual framework to describe how environmental factors influence the participation of people with disabilities, highlighting 8 domains of environmental facilitators and barriers (built, natural, assistive technology, transportation, information and technology access, social support and attitudes, systems and policies, economics) and a transactional model showing the influence of environmental factors on participation at the micro (individual), mesa (community), and macro (societal) levels. Focus group data validated some International Classification of Functioning, Disability and Health environmental categories while also bringing unique factors (eg, information and technology access, economic quality of life) to the fore. Data were used to construct items to enable people with disabilities to assess the impact of environmental factors on everyday participation from their firsthand experience. Conclusions: Participants with disabilities voiced the need to evaluate the impact of the environment on their participation at the immediate, community, and societal levels. The results have implications for assessing environmental facilitators and barriers to participation within rehabilitation and community settings, evaluating outcomes of environmental interventions, and effecting system and policy changes to target environmental barriers that may result in societal participation disparities versus opportunities. (C) 2015 by the American Congress of Rehabilitation Medicine
引用
收藏
页码:578 / 588
页数:11
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