Optimization of the transition process of youth with liver disease in adulthood: A position paper from FILFOIE, the French network for paediatric and adult rare liver diseases

被引:11
作者
Antonini, Teresa Maria [1 ,2 ,3 ,4 ]
Girard, Muriel [4 ,5 ]
Habes, Dalila [3 ,4 ,5 ,6 ]
Goria, Odile [4 ,7 ,8 ]
Debray, Dominique [4 ,5 ]
机构
[1] Hop Paul Brousse, AP HP, Ctr Hepatobiliaire, F-94800 Villejuif, France
[2] INSERM, Unite 1193, F-94800 Villejuif, France
[3] Dept Hosp Univ Hepatinov, F-94800 Villejuif, France
[4] Filiere Sante Malad Rares Foie Adulte & Enfant Fi, Villejuif, France
[5] Univ Paris 05, Hop Necker, AP HP, Unite Hepatol Pediat,Ctr Reference Atresie Voies, F-75014 Paris, France
[6] Hop Bicetre, AP HP, Serv Hepatol Pediat, Ctr Reference Latresie Voies Biliaire & Cholestas, F-94800 Le Kremlin Bicetre, France
[7] CHU Rouen, Serv Hepatogastroenterol, F-76000 Rouen, France
[8] Hop Beaujon, AP HP, Ctr Reference Malad Vasc Foie, Serv Hepatol, Clichy, France
关键词
Transition; Liver disease; Adolescent; Young adults; Liver transplantation; ADOLESCENTS; CARE; TRANSPLANTATION; MANAGEMENT; STATEMENT; GUIDELINE;
D O I
10.1016/j.clinre.2019.07.018
中图分类号
R57 [消化系及腹部疾病];
学科分类号
摘要
Transition describes a progressive and highly coordinated process encompassing the transfer of a young patient from paediatric care to the adult-care system. Transfer of medical care for an adolescent to adult services is a complex and challenging task requiring close collaboration of both the paediatric and adult-care providers. It must take into account the medical, psychosocial and educational needs of the young adult. The Transition Working Group of the French Network for Rare Liver Diseases (FILFOIE) proposes recommendations and tools designed to optimise the transition process of adolescents and young adults with chronic liver disease from child-based to adult-based healthcare services, focusing on three key time points: preparation before the transfer, the transfer process to the adult service, and finally reception and follow-up within the adult-care service. (C) 2019 Published by Elsevier Masson SAS.
引用
收藏
页码:135 / 141
页数:7
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