RESEARCH ETHICS EDUCATION FOR COMMUNITY-ENGAGED RESEARCH: A REVIEW AND RESEARCH AGENDA

被引：84

作者：

Anderson, Emily E. ^{[1
]}

Solomon, Stephanie ^{[2
]}

Heitman, Elizabeth ^{[3
]}

DuBois, James M. ^{[2
]}

Fisher, Celia B. ^{[4
]}

Kost, Rhonda G. ^{[5
]}

Lawless, Mary Ellen ^{[6
]}

Ramsey, Cornelia ^{[7
]}

Jones, Bonnie ^{[8
]}

Ammerman, Alice ^{[8
]}

Ross, Lainie Friedman ^{[9
,10
,11
]}

机构：

[1] Loyola Univ Chicago, Neiswanger Inst Bioeth & Hlth Policy, Stritch Sch Med, Chicago, IL 60626 USA

[2] St Louis Univ, Albert Gnaegi Ctr Hlth Care Res Eth, St Louis, MO 63103 USA

[3] Vanderbilt Univ, Ctr Biomed Eth & Soc, Med Ctr, Nashville, TN 37203 USA

[4] Fordham Univ, Bronx, NY 10458 USA

[5] Rockefeller Univ, Ctr Clin & Translat Sci, New York, NY 10021 USA

[6] Case Western Reserve Univ, Clin Translat & Sci Collaborat Award CTSC, Cleveland, OH 44106 USA

[7] Virginia Commonwealth Univ, Ctr Clin & Translat Res CCTR, Richmond, VA 23284 USA

[8] Univ N Carolina, Chapel Hill, NC 27515 USA

[9] Univ Chicago, Dept Pediat, MacLean Ctr Clin Med Eth, Chicago, IL 60637 USA

[10] Univ Chicago, Dept Med, MacLean Ctr Clin Med Eth, Chicago, IL 60637 USA

[11] Univ Chicago, Dept Surg, MacLean Ctr Clin Med Eth, Chicago, IL 60637 USA

来源：

JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS | 2012年 / 7卷 / 02期

基金：

美国国家卫生研究院;

关键词：

community-based participatory research; community-engaged research; research ethics education; HUMAN-SUBJECTS PROTECTION; PARTICIPATORY RESEARCH; RESPONSIBLE CONDUCT; RESEARCH-NETWORK; HEALTH RESEARCH; MORAL DISTRESS; CHALLENGES; INSTRUCTION; KNOWLEDGE; DILEMMAS;

D O I：

10.1525/jer.2012.7.2.3

中图分类号：

B82 [伦理学（道德学）];

学科分类号：

摘要：

COMMUNITY ENGAGEMENT IS INCREASINGLY becoming an integral part of research. "Community-engaged research" (CEnR) introduces new stakeholders as well as unique challenges to the protection of participants and the integrity of the research process. We a group of representatives of CTSA-funded institutions and others who share expertise in research ethics and CEnR have identified gaps in the literature regarding (1) ethical issues unique to CEnR; (2) the particular instructional needs of academic investigators, community research partners, and IRB members; and (3) best practices for teaching research ethics. This paper presents what we know, as well as what we still need to learn, in order to develop quality research ethics educational materials tailored to the full range of stakeholder groups in CEnR.

引用

页码：3 / 19

页数：17

共 71 条

[1] Ethical dilemmas in evaluations using indigenous research workers [J].

Alexander, Leslie B. ;

Richman, Kenneth A. .

AMERICAN JOURNAL OF EVALUATION, 2008, 29 (01) :73-85

[2] The Role of Community-Based Organizations in the Recruitment of Human Subjects: Ethical Considerations [J].

Anderson, Emily E. .

AMERICAN JOURNAL OF BIOETHICS, 2010, 10 (03) :20-21

[3]

[Anonymous], 2009, RES HIGH RISK POPULA

[4]

[Anonymous], 2011, Principles of community engagement, V2nd

[5] Evaluating the Effects That Existing Instruction on Responsible Conduct of Research Has on Ethical Decision Making [J].

Antes, Alison L. ;

Wang, Xiaoqian ;

Mumford, Michael D. ;

Brown, Ryan P. ;

Connelly, Shane ;

Devenport, Lynn D. .

ACADEMIC MEDICINE, 2010, 85 (03) :519-526

[6] A Meta-Analysis of Ethics Instruction Effectiveness in the Sciences [J].

Antes, Alison L. ;

Murphy, Stephen T. ;

Waples, Ethan P. ;

Mumford, Michael D. ;

Brown, Ryan P. ;

Connelly, Shane ;

Devenport, Lynn D. .

ETHICS & BEHAVIOR, 2009, 19 (05) :379-402

[7] Betwixt & Between: Peer Recruiter Proximity in Community-Based Research [J].

Bean, Sally ;

Silva, Diego S. .

AMERICAN JOURNAL OF BIOETHICS, 2010, 10 (03) :18-19

[8] The CITI program: An international online resource for education in human subjects protection and the responsible conduct of research [J].

Braunschweiger, Paul ;

Goodman, Kenneth W. .

ACADEMIC MEDICINE, 2007, 82 (09) :861-864

[9] A Case Study of Community-Based Participatory Research Ethics: The Healthy Public Housing Initiative [J].

Doug Brugge ;

Alison Kole .

Science and Engineering Ethics, 2003, 9 (4) :485-501

[10] Developing Methods to Compare Low-Education Community-Based and University-Based Survey Teams [J].

Brugge, Doug ;

Kapunan, Patricia ;

Babcock-Dunning, Lauren ;

Matloff, Robyn Greenfield ;

Cagua-Koo, Daniel ;

Okoroh, Ekwutosi ;

Salas, Fatima L. ;

Bradeen, Laura ;

Woodin, Mark .

HEALTH PROMOTION PRACTICE, 2010, 11 (05) :645-653

← 1 2 3 4 5 6 7 8 →