Making reasonable and achievable adjustments: the contributions of learning disability liaison nurses in "Getting it right' for people with learning disabilities receiving general hospitals care

被引:49
作者
MacArthur, Juliet [1 ,2 ]
Brown, Michael [3 ,4 ,5 ]
McKechanie, Andrew [5 ,6 ,7 ]
Mack, Siobhan [8 ]
Hayes, Matthew [5 ]
Fletcher, Joan [5 ]
机构
[1] Western Gen Hosp, Res & Dev, Edinburgh EH4 2XU, Midlothian, Scotland
[2] Hlth Serv Res Unit, Edinburgh, Midlothian, Scotland
[3] Edinburgh Napier Univ, Hlth & Social Care Res, Edinburgh, Midlothian, Scotland
[4] Edinburgh Napier Univ, Learning Disabil, Edinburgh, Midlothian, Scotland
[5] NHS Lothian, Edinburgh, Midlothian, Scotland
[6] Univ Edinburgh, Royal Edinburgh Hosp, Patrick Wild Ctr, Edinburgh EH8 9YL, Midlothian, Scotland
[7] Univ Edinburgh, Royal Edinburgh Hosp, Div Psychiat, Edinburgh EH8 9YL, Midlothian, Scotland
[8] Queen Margaret Univ, Sch Hlth Sci, Speech & Hearing Sci, Musselburgh, Scotland
关键词
acute care; inequalities in health; learning disability; mixed methods; nurses roles; INTELLECTUAL DISABILITIES; HEALTH-CARE; EXPERIENCES; STAFF; MORBIDITY; EDUCATION; SERVICES; WORKING; ADULTS;
D O I
10.1111/jan.12629
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
AimsTo examine the role of learning disability liaison nurses in facilitating reasonable and achievable adjustments to support access to general hospital services for people with learning disabilities. DesignMixed methods study involving four health boards in Scotland with established Learning Disability Liaison Nurses (LDLN) Services. Quantitative data of all liaison nursing referrals over 18 months and qualitative data collected from stakeholders with experience of using the liaison services within the previous 3-6months. MethodsSix liaison nurses collected quantitative data of 323 referrals and activity between September 2008-March 2010. Interviews and focus groups were held with 85 participants included adults with learning disabilities (n=5), carers (n=16), primary care (n=39), general hospital (n=19) and liaison nurses (n=6). Results/findingsFacilitating reasonable and achievable adjustments was an important element of the LDLNs' role and focussed on access to information; adjustments to care; appropriate environment of care; ensuring equitable care; identifying patient need; meeting patient needs; and specialist tools/resources. ConclusionEnsuring that reasonable adjustments are made in the general hospital setting promotes person-centred care and equal health outcomes for people with a learning disability. This view accords with Getting it right' charter produced by the UK Charity Mencap which argues that healthcare professionals need support, encouragement and guidance to make reasonable adjustments for this group. LDLNs have an important and increasing role to play in advising on and establishing adjustments that are both reasonable and achievable.
引用
收藏
页码:1552 / 1563
页数:12
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