Research informatics and the COVID-19 pandemic: Challenges, innovations, lessons learned, and recommendations

被引:10
作者
Bookman, Richard J. [1 ]
Cimino, James J. [2 ]
Harle, Christopher A. [3 ]
Kost, Rhonda G. [4 ]
Mooney, Sean [5 ]
Pfaff, Emily [6 ]
Rojevsky, Svetlana [7 ]
Tobin, Jonathan N. [8 ]
Wilcox, Adam [9 ]
Tsinoremas, Nick F. [10 ]
机构
[1] Univ Miami, Clin & Translat Sci Inst, Dept Mol & Cell Pharmacol, Miami, FL USA
[2] Univ Alabama Birmingham, Ctr Clin & Translat Sci, Inst Informat, Birmingham, AL USA
[3] Univ Florida, Clin & Translat Sci Inst, Dept Hlth Outcomes & Biomed Informat, Gainesville, FL USA
[4] Rockefeller Univ, Ctr Clin & Translat Sci, 1230 York Ave, New York, NY 10021 USA
[5] Univ Washington, Inst Translat Hlth Sci, Seattle, WA 98195 USA
[6] Univ North Carolina Chapel Hill, Dept Med, North Carolina Translat & Clin Sci Inst, Chapel Hill, NC USA
[7] Tufts Med Ctr, Clin & Translat Inst, Boston, MA 02111 USA
[8] Rockefeller Univ, Clin Directors Network, Ctr Clin & Translat Sci, 1230 York Ave, New York, NY 10021 USA
[9] Univ Washington, Inst Translat Hlth Sci, Dept Biomed Informat & Med Educ, Seattle, WA 98195 USA
[10] Univ Miami, Clin & Translat Sci Inst, Dept Biochem & Mol Biol, Miami, FL USA
关键词
CTSA; COVID-19; informatics; N3C; research;
D O I
10.1017/cts.2021.26
中图分类号
R-3 [医学研究方法]; R3 [基础医学];
学科分类号
1001 ;
摘要
The recipients of NIH's Clinical and Translational Science Awards (CTSA) have worked for over a decade to build informatics infrastructure in support of clinical and translational research. This infrastructure has proved invaluable for supporting responses to the current COVID-19 pandemic through direct patient care, clinical decision support, training researchers and practitioners, as well as public health surveillance and clinical research to levels that could not have been accomplished without the years of ground-laying work by the CTSAs. In this paper, we provide a perspective on our COVID-19 work and present relevant results of a survey of CTSA sites to broaden our understanding of the key features of their informatics programs, the informatics-related challenges they have experienced under COVID-19, and some of the innovations and solutions they developed in response to the pandemic. Responses demonstrated increased reliance by healthcare providers and researchers on access to electronic health record (EHR) data, both for local needs and for sharing with other institutions and national consortia. The initial work of the CTSAs on data capture, standards, interchange, and sharing policies all contributed to solutions, best illustrated by the creation, in record time, of a national clinical data repository in the National COVID-19 Cohort Collaborative (N3C). The survey data support seven recommendations for areas of informatics and public health investment and further study to support clinical and translational research in the post-COVID-19 era.
引用
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页数:8
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