Lack of Truth-Telling in Palliative Care and Its Effects among Nurses and Nursing Students

被引:19
作者
Testoni, Ines [1 ,2 ]
Wieser, Michael Alexander [3 ]
Kapelis, Dafni [4 ]
Pompele, Sara [1 ]
Bonaventura, Marino [5 ]
Crupi, Robert [6 ]
机构
[1] Univ Padua, Dept Philosophy Sociol Pedag & Appl Psychol FISPP, I-35131 Padua, Italy
[2] Univ Haifa, Arts Therapies Res Ctr, IL-3498838 Haifa, Israel
[3] Univ Klagenfurt, Inst Psychol, A-9020 Klagenfurt, Austria
[4] Palliat Care Dept, ULSS 8 Asolo, I-31011 Treviso, Italy
[5] Univ Padua, Dept Neurosci, I-35128 Padua, Italy
[6] NewYork Presbyterian Queens, New York, NY 11355 USA
关键词
truth-telling; attitudes; palliative care; grief; euthanasia; moral distress; PROGNOSIS-RELATED COMMUNICATION; CANCER DISCLOSURE; PERCEPTIONS; PHYSICIANS; PREVALENCE; DIAGNOSIS; DILEMMAS; FAMILIES; LIFE;
D O I
10.3390/bs10050088
中图分类号
B84 [心理学];
学科分类号
04 ; 0402 ;
摘要
Unclear communication of inauspicious prognoses may disorientate both patients and their relatives, drastically jeopardizing the planning of palliative care. This paper considers the issue of truth-telling in the communicative problems of nurses and students of nursing with terminally ill patients. The fundamental objective is the analysis of the difficulties related to the lack of truth-telling and how it might impact their professional and personal lives. A qualitative study was realized, involving 47 participants, both nurses (25) and nursing students (22), working in palliative care units or in associations of volunteers for the assistance of oncological patients. The exploration was focused on the way they relate to patients who are not aware of their real health conditions and their consequences. Particular attention was paid to their opinions concerning what could be done in order to manage such problematic situations in the near future.
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页数:13
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共 32 条
[1]   Exploring perceptions and preferences of patients, families, physicians, and nurses regarding cancer disclosure: a descriptive qualitative study [J].
Abazari, Parvaneh ;
Taleghani, Fariba ;
Hematti, Simin ;
Ehsani, Maryam .
SUPPORTIVE CARE IN CANCER, 2016, 24 (11) :4651-4659
[2]   "Operating in the dark": Nurses' attempts to help patients and families manage the transition from oncology to comfort care [J].
Canzona, Mollie Rose ;
Love, Deborah ;
Barrett, Rolland ;
Henley, Joanne ;
Bridges, Sara ;
Koontz, Adam ;
Nelson, Sharon ;
Daya, Serena .
JOURNAL OF CLINICAL NURSING, 2018, 27 (21-22) :4158-4167
[3]  
DIGIACOMO P, 2012, PROFESSIONI INFERMIE, V3, P143
[4]   Perceptions of patients, families, physicians and nurses regarding challenges in cancer disclosure: A descriptive qualitative study [J].
Ehsani, Maryam ;
Taleghani, Fariba ;
Hematti, Simin ;
Abazari, Parvaneh .
EUROPEAN JOURNAL OF ONCOLOGY NURSING, 2016, 25 :55-61
[5]   Preference of cancer patients and family members regarding delivery of bad news and differences in clinical practice among medical staff [J].
Fan, Zhongyi ;
Chen, Liyan ;
Meng, Limin ;
Jiang, Haihua ;
Zhao, Qianqian ;
Zhang, Lili ;
Fang, Chun-Kai .
SUPPORTIVE CARE IN CANCER, 2019, 27 (02) :583-589
[6]  
Federazione Nazionale degli Ordini dei Medici Chirurghi e degli Odontoiatri (National Federation of the General Medical and Orthodontist Councils), 2014, COD MED DEONT
[7]  
Federazione Nazionale Ordini Professioni Infermieristiche (National Federation Nursing Professions Councils), 2009, NURS DEONT COD
[8]   Palliative care in cancer: managing patients' expectations [J].
Ghandourh, Wsam A. .
JOURNAL OF MEDICAL RADIATION SCIENCES, 2016, 63 (04) :242-257
[9]   The Possibilities of Phenomenology for Organizational Research [J].
Gill, Michael J. .
ORGANIZATIONAL RESEARCH METHODS, 2014, 17 (02) :118-137
[10]   Oncology Nurses' Attitudes Toward Prognosis-Related Communication: A Pilot Mailed Survey of Oncology Nursing Society Members [J].
Helft, Paul R. ;
Chamness, Amy ;
Terry, Colin ;
Uhrich, Margaret .
ONCOLOGY NURSING FORUM, 2011, 38 (04) :468-474