"We never speak about death." Healthcare professionals' views on palliative care for inpatients in Tanzania: A qualitative study

被引:17
|
作者
Lewis, E. Grace [1 ]
Oates, Lloyd L. [1 ]
Rogathi, Jane [2 ]
Duinmaijer, Ashanti [3 ]
Shayo, Aisa [3 ]
Megiroo, Simon [4 ]
Bakari, Barthlomew [5 ]
Dewhurst, Felicity [6 ]
Walker, Richard W. [1 ]
Dewhurst, Matt [7 ]
Urasa, Sarah [3 ]
机构
[1] North Tyneside Gen Hosp, Northumbria Healthcare NHS Fdn Trust, North Shields, England
[2] Kilimanjaro Christian Med Ctr, Moshi, Kilimanjaro, Tanzania
[3] Haydom Lutheran Hosp, Manyara, Mbulu, Tanzania
[4] Evangel Lutheran Church Tanzania, North Cent Diocese Arusha, Arusha Lutheran Med Ctr, Arusha, Tanzania
[5] Nkoaranga Lutheran Hosp, Arusha, Tanzania
[6] Hlth Educ North East, Newcastle Upon Tyne, Tyne & Wear, England
[7] North Tees & Hartlepool NHS Fdn Trust, North Tees & Hartlepool, Stockton On Tees, England
关键词
Palliative care; Inpatient; Sub-Saharan Africa; Qualitative; Healthcare professionals; SUB-SAHARAN AFRICA; OF-LIFE CARE; END; COUNTRIES; ILLNESS; HIV/AIDS; SERVICES; LESSONS; HEALERS; RWANDA;
D O I
10.1017/S1478951517000748
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Objective:Little is known about the current views and practices of healthcare professionals (HCPs) in Sub-Saharan Africa (SSA) regarding delivery of hospital palliative care. The present qualitative study explored the views of nursing staff and medical professionals on providing palliative and end-of-life care (EoLC) to hospital inpatients in Tanzania.Method:Focus group discussions were conducted with a purposive sample of HCPs working on the medical and pediatric wards of the Kilimanjaro Christian Medical Centre, a tertiary referral hospital in northern Tanzania. Transcriptions were coded using a thematic approach.Results:In total, 32 healthcare workers were interviewed via 7 focus group discussions and 1 semistructured interview. Four major themes were identified. First, HCPs held strong views on what factors were important to enable individuals with a life-limiting diagnosis to live and die well. Arriving at a state of acceptance was the ultimate goal; however, they acknowledged that they often fell short of achieving this for inpatients. Thus, the second theme involved identifying the barriers to delivering palliative care in hospital. Another important factor identified was difficulty with complex communications, particularly breaking bad news, the third theme. Fourth, participants were divided about their personal preferences for place of EoLC, but all emphasized the benefits of the hospital setting so as to enable better symptom control.Significance of results:Despite the fact that all the HCPs interviewed were regularly involved in providing palliative and EoLC, they had received limited formal training in its provision, although they identified such training as a universal requirement. This training gap is likely to be present across much of SSA. Palliative care training, particularly in terms of communication skills, should be comprehensively integrated within undergraduate and postgraduate education. Research is needed to develop culturally appropriate curricula to equip HCPs to manage the complex communication challenges that occur in caring for a diverse inpatient group with palliative care needs.
引用
收藏
页码:566 / 579
页数:14
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